Category: Support for Parent Caregivers

Providing support and information to parent caregivers. Discussing TSC (Tuberous Sclerosis Complex) as well as autism, epilepsy, IDD, and other related topics. TSC Talks the Podcast gives a voice to people dealing with these issues and the people who love and take care of them. Offering support and compassion as parents attempt to navigate the labyrinth of care TSC demands. In addition, we explore the trauma incurred by experiencing repeated medical emergencies in one’s child. By harnessing our voices and sharing our experiences we can both support and educate. We can advocate for more respect and compassion from the medical providers we see and teach them how to serve us better. We support parent caregivers with message boards and hope to integrate further interactive features in the future.

TSC Talks Revival!! JUSTIN LESLIE of Project Whistleblower ~ Truth Under Fire

This is a special edition, TSC Talks Revival episode with Justin Leslie! Justin is an ex-Pfizer scientist and whistleblower. Justin was also one of my first guests on my podcast “TSC Talks” in 2018, (https://bit.ly/3Iz0FUU) where he shared his story about his experience with diagnosis and living with TSC.

I met Justin back in 2016ish through my friendship with his mother, Dorina Leslie. I had qualified and was training for the Boston Marathon to raise money for Tuberous Sclerosis Complex research and was posting about it on social media. Dorina, who had a son diagnosed with TSC, read my story, “Mom of 3 with TSC Runs Boston” (or something like that) and reached out in a Facebook Group. She was so encouraging and supportive! We became friends.  As I started to build the podcast TSC Talks, she suggested I interview her son, Justin, who had a mild form of TSC. Justin had been diagnosed with this dis-ease, later in life than most, and yet had had some significant struggles he’d had to overcome. Struggles that might be helpful if shared and heard by others in similar circumstances.

So, we did the (first) interview. It was incredible to have this young man who had really struggled with his own mortality and sense of purpose after receiving a TSC diagnosis, come and share from the heart, with such conviction, his lived experience and vision for going to study pharmacology to eventually contribute to finding a cure for this hateful dis-ease, Tuberous Sclerosis Complex. His podcast was a hit in the small community centered around TSC and was an inspiration to many. Flash forward several years. I stayed in touch with Justin’s mom, and she’d tell me what he was up to from time to time. He had such a passion and intensity about him, I was confident he was going to make some important contributions. I knew he had been working at Pfizer, and hated it, & the next thing I knew, he was working with Project Veritas and Dorina couldn’t talk about it. I was like Wow. Then more recently he showed up in my feed in pictures from a retreat he attended with Alec Zeck. What a whirlwind! I wanted to talk to him again.

We connected in January 2024 in a phone convo and Justin filled me in on what had been going on with him of late. I was blown da feck away!!! Not only had Justin been working at Pfizer but had gone undercover as a double agent working for Project Veritas, then again at OMG Media with James O’Keefe. He shared that he was working on a documentary called “Project Whistleblower” and was chronicling in the most riveting way, his experiences and strong soul’s urging to share the whole truth of what he uncovered during these last few years.

I told him I’d love to interview him and catch up on his story since the time he was on TSC Talks. I felt it would be so relevant for both of us as we’d kind of come full circle in seeing the inversions of the systems we’d both been heavily invested in and gone through intense disillusionment, yet come away with a renewed passion for getting beyond all the disconnections, fragmentations, half truths of the systems and get at root causes …for TSC, for dis-ease…so I’m sharing the transcript here from our first interview and will be sharing the transcript from our upcoming interview as well! I think this is incredibly important to Justin’s “story” as it demonstrates the vast transformation in awareness and understanding of the systemic inversion and the trance like spell so many are under regarding the half truths and flat out deception propagated over many years, but specifically since 2020 and the injection of half truths related to just about everything we’ve collectively held sacred.  So here we go…here’s the first interview we did together, both in completely different mindsets and circumstances meeting to discuss the impact of the rare disease, TSC.

In “Project Whistleblower” Justin shares his personal journey, including living with Tuberous Sclerosis Complex (TSC), a condition that not only shaped his childhood but also inspired him to pursue a career in pharmacology, aiming to find a cure for his condition.

During his time as a vaccine scientist at Pfizer, Justin began to collaborate undercover with Project Veritas. This partnership led to the revealing of mind blowing revelations about the COVID-19 ‘scamdemic’ and other alleged misconduct within Pfizer. However, he soon started to observe concerning behaviors within Project Veritas, such as the suppression of timely truths and vaccine concerns. These observations led him to question the integrity of the organization and its founder, James O’Keefe.

In collaboration with Marty Leeds, Justin has produced the compelling documentary “Project Whistleblower.” This film delves into his experiences and his growing awareness of the covert tactics and manipulations at Pfizer, Project Veritas, and OMG Media Group. In an era rife with lies and deception, the documentary underscores the revolutionary act of truth-telling.” (credit to Amanda Vollmer: https://yummy.doctor/video-list/advocates-for-truth-amandha-vollmer-adv-with-justin-leslie/)
Contact info for Justin!
Justin Leslie: https://justintegrity.net/
Justin’s Linktree: https://linktr.ee/justinleslie
Contact: justinleslie3@protonmail.com
Donate to Justin’s work: https://www.givesendgo.com/ProjectWhistleblower

WATCH THE DOCUMENTARY HERE:  https://justintegrity.net/project-whistleblower/
Produced by: https://linktr.ee.com/jillwoodworthhttps://jillwoodworth.com

Short clip produced by @jillwoodworth
https://jillwoodworth.com

TSC Talks! Final podcast~Wrapping it Up & Thanks

Jill wraps up the podcast! I started in 2016 by interviewing my kids and how they were affected by Tuberous Sclerosis Complex. It was absolutely divine inspiration from the start and branched out shortly after to interviewing community members and other professionals who worked with those affected. From there, I explored many different topics, providing information and resources in interview form, all with relevance to the individuals and/or parents/caregivers affected by a chronic illness like TSC.

Pushing the boundaries of what was deemed “safe and effective” by our medical system, I continued to put the info out there based on my own lived experience as a parent/caregiver living and dealing with what I’d come to discover is CPTSD if you want to use a label. It was my vision and still is that all “remedies” for improving the quality of life of all involved in the wheels of chronic illness, particularly one such as TSC which affects all the vital body organs, will be an option for all.

Why should we hold back the river when there are so many speaking about how their lives have been impacted by sharing their truths, sharing what’s worked for them and what potentially might help another ease the very real and almost daily traumas of attempting to live with an open heart and navigate our inverted systems of care?

Many of these podcasts go against the grain of what people are comfortable hearing. There are always positive takeaways but there are some heavy heavy experiences that people are walking through and talking about and must be given voice. I think through honest conversation, and taking full responsibility for one’s reactions to other’s sharing from their most painful, heart-wrenching moments, we can begin to hear each other once again at least long enough to realize, we’re all having vastly different experiences yet we all long to be here now, safe, loved, whole, home.

Thanks for tuning in and being here there and everywhere. It’s been the pleasure of a lifetime to have the opportunity to create and share this work.

Love Jill

Giving Thanks for My Specials – Thanksgiving Day 1993 Nina Patry~Guest Blogger

The following blog was written in 1993 by my new and good friend, Nina Patry. Nina hails from Rutland Vermont. Her claim to fame is that she is a certified Paradox Process instructor. We met last year while I was getting called up on a Lorie Ladd live event and not able to get my equipment to work to … Continue reading “Giving Thanks for My Specials – Thanksgiving Day 1993 Nina Patry~Guest Blogger”

The following blog was written in 1993 by my new and good friend, Nina Patry. Nina hails from Rutland Vermont. Her claim to fame is that she is a certified Paradox Process instructor. We met last year while I was getting called up on a Lorie Ladd live event and not able to get my equipment to work to connect. Nina was cheering me on and we ended up chatting on FB and pretty soon we both realized we had connections to special needs individuals. Me, as a parent, and she as a sister and aunt. We’ve been friends ever since, in fact, to learn more about Nina, listen to the podcast I did with her. (link) During a recent conversation, we were discussing some of our experiences of the extraordinary abilities of our loved ones with special needs to be far more energetically tuned in than most ever imagine and what a gift, it was to have these “seers” in our lives. Then she read me the following bit of prose she’d written, which I immediately knew I had to share. I left the language as written. While harsh to read, it speaks somewhat to a bit of evolution of consciousness, that must continue in an accelerated manner related to all things we now define as “special needs”. Thanks, Nina for this precise and moving piece.

I went to Church this morning.  First time in a long time.  In Charlottesville, Virginia, where a large portion of our family has gathered for Thanksgiving.  And I found myself particularly thankful for the special people in my life.

I sat in the front row, surrounded by my brother and my nieces –  all “special needs” people. Christopher with Down Syndrome, thirty-two years young; Maggie and Emma are developmentally delayed, with no more specific label attached.  Maggie and Emma are identical twins, eight and a half years young.

Retarded.  Developmentally delayed.  Rather judgmental terms—or at least markings at the low end along a linear evaluation of human beings.  I prefer the Rudolf Steiner/Camp Hill movement view.  That perspective places these people, at least on the spiritual plane, as beings more closely aligned with the unseen spiritual aspects of reality.  They are seen as souls who have difficulty adapting to, accepting, relating to the advanced state of materialism much of our world reflects these days.

It is said in Camp Hill literature I have read, that these souls incarnate, but cannot enter fully into the mindsets, perceptions, and values currently dominant in “modern” or “postmodern” culture.  Instead, these folk arrive, one foot in and one foot out.  Here, but not here in the same way the rest of us are.  And in that difference, their presence is a strong conduit, one which the spiritual plane needs to help bring our world back into balance.

These folk live their lives in many senses free of the pressures, drives, greed, and fears that many of us “normals” experience.  They exist on more basic levels.  And freedom from the materialist drives seems to leave them more time and energy for the truly important aspects of life.  The unseen.  Love joy emotions happiness.  Freer to be themselves—they don’t understand so well our “civilized” codes—the dress code, the wariness and distance with “strangers” codes, codes on the “proper” ways to be in various situations.

I personally love to witness the ways in which this freedom reveals itself.  Both Chris and the twins are more overtly, actively friendly to strangers than many other people I know.  Saying hello, smiling, sometimes staring (definitely considered rude by some), but it is clearly an observation and awareness of others that many of us believe need to be kept secret for some reason.

My brother loves to attend performances of many kinds, especially musical performances.  He will encourage the performers from the audience.  Give them the thumbs-up sign or a wave.  He is often the first on his feet to give a standing ovation and likes to go up to the stage and shake hands with the performers.  (If any opportunity presents itself for him to get his hands on a microphone, so much the better!)

And last night, too, when Mom, Dad, Chris, and I arrived at the airport, Maggie and Emma’s greeting was contagious.  Flapping, smiling, almost flying around the airport in their unconfined excitement over our arrival.  For these and so many other reasons, I am eternally giving thanks for my specials.  

https://linktr.ee/jillwoodworth

Special Needs Parents & Caregivers! Check out this discussion of Stem Cell Activating Patches!

An informational meeting on x39 stem cell activating patches and other patches offered by Lifewave. We were joined by Dr. Staci Holweger! Dr. Staci has had remarkable results using these patches personally and to help her own 19-year-old daughter with special needs and would like to reach out specifically to the special needs community about this technology. (https://www.drstaci.net/). I’ve personally had amazing results as has my special needs son (20 with Tuberous Sclerosis Complex/ADHD/anxiety/aggression) “Since 2004, LifeWave has helped people all over the world realize their greatest potential. Our patented, proprietary wellness products help to deliver more energy and stamina, mental acuity, better sleep, reduced stress, improved skin appearance, faster-wound healing, and an overall feeling of youthful vitality. Our products also help people reduce body fat and decrease pain.” https://startx39.com 

For more information~https://lifewave.com/jwoodworth to schedule a call~ https://calendly.com/tsctalkspodcast or email me~ pjlacy6@gmail.com

Points of Light~Linsey Hurley~Holistic Health Coach Working with Cutting Edge Energy Healing Technologies “Silver Linings”

Linsey Hurley is a holistic health coach, and she has worked with cutting-edge energy healing technologies for many years. She was led to the alternative health field after her experience witnessing her sister go through stage 4 breast cancer within the mainstream health system. Despite her and her sister doing much research and finding alternative treatments which when suggested, were basically brushed off and ignored. This was over 40 years ago. She ultimately lost her sister, and faith in our conventional system, which explains the silver lining. Her sister inspires her and is with her every day and she is grateful for her impact on her life, ultimately pushing Linsey into utilizing and sharing these amazing healing energy devices and tools today! The rest of this story is in the podcast. See timestamps from the transcript below.

I met Linsey Hurley this past December when we both participate in a Freedom Flash Mob dance event at a local mall. It was a fun and powerful event, a group of locals suddenly bursting into dance and raising awareness of our right to medical freedom! So, I figured the people I met at this event were pretty special. I got a text from Linsey a few weeks ago and we got to chatting. She told me a bit about her business and this new patch she had been guided to that was quite interesting. At that point, I decided to invite her on the podcast to discuss and was quite impressed with what I learned, and the potential of this new tool, X39 patches as well as other offerings at Livewave

If interested in learning more, you can reach out to Linsey at linsey@newview.org by phone at 9787937291. For more information on the product~ https://startx39.com and if you would like to sample some, contact Jill Woodworth at pjlacy6@gmail.com or order at https://lifewave.com/jwoodworth

Here are a few links with some scientific info~
http://stemcellpatchresources.com/wp-content/uploads/2019/11/QA.pdf
https://www.lifewave.com/Content/images/home/science/pdf/Photobiomodulation-or-low-level-laser-therapy.pdf
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6073405/
https://newswire.net/newsroom/blog-post/00227659-the-science-behind-life-wave-s-wearable-phototherapy-technology.html
https://theoptionsph.com/2021/01/10/lifewave-phototherapy-patches-too-good-to-be-true/

timestamps:
1-2:18 Introduction
2:18~Linsey’s story, holistic health coach…. started 40+ years ago when her sister was diagnosed with stage four breast cancer
3:06~this experience w/her sister and watching her go through all the conventional treatments to no avail despite doing research w/her sister on alternative options, led her to not have much trust in our conventional medical system
3:57~Again her experience with her sister led her to alternative health and deeper into spirituality to process this loss, which was over 40 years ago and she’s still here. She considers this a gift from her sister.
5:36 the mainstream narrative keeps us in fear and subservience with no energy to consider why we are here
5:57~Linsey’s sister is still with her
6:32~Start of discussion on X39 patches which support the body’s natural systems
7:23~the body is brilliant! We can support it in the way it wants to heal
7:45~FDA glitch at beginning of the pandemic, Linsey could not use regular tools such as the Beamer and was led to X39 patches
8:06~X39 patches are a frequency device that activates the body’s stem cells.
8:37~A discussion of exactly what stem cell therapy is, what’s involved, the expense, often making it inaccessible and usually used as a last-ditch effort when all else has failed
9:53~further explanation of the patch, non-transdermal, made of amino acids and salt crystals, activates different reactions In the body
10:36~the science is putting frequencies on the skin that cause other reactions leading to doing some healing
11:04~David Schmidt is a scientist who was hired by the Navy to develop a patch for Navy Seals to replace amphetamines
12:02~Linsey uses a lot of patches now she has all her grandchildren living with her~more patches have been developed
12:24~David Schmidt brought this technology to a friend who was a coach of UCLA swimming, he’s been developing and working on it ever since. Different patches are all based on the frequency
13:15~X39 patch is the holy grail -activates GHK Copper Peptides that decline with age
14:10~It’s just actually about age reversal, have had a 70-year-old test with the body of a 50-year-old
15:00~Helps with all kinds of degenerative diseases, many testimonials, MS, Parkinson’s
16:17~comparison of different frequency devices, AO Scan, Beamer, all are wonderful and if possible used right now to get through these times when we are bombarded with energies, 5G, EMF…
17:20~Linsey had an autoimmune disorder, 15-20 years ago, had to quit her job, “3-year retreat”, trusted spirit, found Kangen water, another healing modality which was expensive but a good investment as she was able to heal.
20:29~Our healthcare systems are frustrating, organ-based, siloed, going from one drug to the next, Band-Aid instead of getting at the deeper reason for illness, no quality of life
22:06~Doctors educated at medical schools funded by big pharma and are taught nothing in regards to energy even though they use technology like MRIs which could be used in healing
23:18 Bruce Lipton~Placebo effect
24:00~Potential for special needs communities is huge with these patches, also for parents and caregivers
24:21~Only restriction is not to use the patches during chemotherapy as it will detox the chemo
25:05 If the patch effect is too strong, take it off for a few hours. Linsey’s experience with retracing
26:36~You won’t want to stop, you will see a decrease in results if you do not continue use, Linsey is very upfront about this. This is an out-of-the-box business paradigm and opportunity!