TSC Talks Parenting and Healthcare with Brooke Alisha and Jill Woodworth. This is the full-length audio recording of our TSC Talks hosted, Facebook Live conversation on this topic. Brooke Alisha is an adult and parent living with TSC and Jill Woodworth, the host of TSC Talks, is a parent to several offspring living with Tuberous Sclerosis Complex.
They discuss the extreme behavioral and mental health challenges of TSC and similar conditions that include a neuropsychiatric component, TAND. The weight on the family and ripple effect on relationships can be devastating. Managing care across a lifetime requires exceptional measures of coordination and communication for which parents/families are not prepared. The individual and/or parent/caregiver becomes quite knowledgeable but is put in positions no individual, parent or family should be in, making high-level medical decisions on a daily basis in crisis laden situations. Our systems of care have become akin to a “Tower of Babel” and TSC care often exposes these broken and siloed systems.
They also discuss alternative medicine options that they each have utilized and for which they feel strongly can be useful for those living with TSC and other chronic life-threatening conditions. Long term polypharmacy issues are incredible and waiting for pharmaceutical formulations of cannabis is not an option. We are witnessing suffering and mental/physical health issues that can be addressed in part through other modalities. Jill is a strong advocate for affordable access to cannabinoid medicine for those living with TSC, recently launched a product that, while not designed to treat or cure, is made with hemp components, terpenes and early reviews are phenomenal. It is called Forest Bathing and brings the benefits of the forest, to you!
Get info at: https://tsctalks.com
Brooke has had huge success utilizing Thrive-THRIVE Experience is an 8-week premium lifestyle plan, to help individuals experience and reach peak physical and mental levels. Check out her Facebook here: https://www.facebook.com/brookey21
If you have any questions or suggestions or you would like to learn more about Forest Bathing or Thrive, contact us here: https://tsctalks.com/contact-us/