Tag: #nurse

TSC Talks Presents: Green Nurses Compilation- What is a Green Nurse?

TSC Talks Presents: Green Nurses Compilation- What is a Green Nurse?

Green Nurses are the bridge between alternative and traditional medicine and have helped transform and provide legitimacy and respect for cannabis as medicine and other alternative options as well! We are grateful for collaboration and support on this content arc from Sherri Tutkus of GreenNurse Group. For our first episode in this series, we’ve compiled a retrospective from past Green Nurse podcast guests giving a brief narrative on why they became a green nurse. This episode includes Marissa Fratoni of Holistic Nurse Mama, Janna Champagne of Integrated Holistic Care, Sherri Tutkus of Green Nurse Group, and Dedee Culley of 2 Leaf Nurses.

 

Marissa Fratoni: Nurse, blogger, freelance writer at Holistic Nurse Mama, and Registered Yoga Teacher at Central Mass Yoga And Wellness. She is a wealth of information and insight on cannabinoid therapeutics holistic medicine and integrative health.

Marissa Fratoni’s Background Story: 7:38

Visiting Nursing: 8:34

How She Got Into Cannabis: 9:16

Another Perception of the Plant, Seeing Miraculous Changes: 9:58

Cannabis helps Detox from Addiction: 10:50

Full Podcast Episode with Marissa Fratoni: https://tsctalks.com/tsc-talks-guest-marissa-fratoni/

https://holisticnursemama.blog/

 

Janna Champagne– Founder at Integrated Holistic Care. Janna’s introduction to the cannabis industry began as a cannabis patient when she suffered a health collapse in 2012. She credits cannabis for helping to reduce her reliance on harmful pharmaceuticals, and for supporting her ability to regain optimal health status. Janna is also known for her daughter’s cannabis/Autism success story, which published on the cover story in a nationwide industry magazine in 2017.

Cannabis Helped Her Daughter: 14:06

Cumulative Long-Term Impact of Pharmaceuticals: 14:53

The Mental Health Industry- Wild West: 16:53

Pharmaceuticals Side Effects: 18:29

Risk VS. Benefit: 19:45

Reversals of Dementia, Improved Behavior in Autism, Improved Function, and Quality of life: 20:06

Gut and Brain Connection: 20:42

Pharmaceutical Driven: 21:21

Full Podcast Episode with Janna Champagne: https://tsctalks.com/tsc-talks-guest-jenna-champagne/

https://jannachampagne.com

 

Sherri Tuktus– Sherri Tutkus is the founder and CEO of GreenNurse Group, Nursing Director at Irie Bliss Wellness and host of GreenNurse on the Go Radio Show. Sherri is a cannabis nurse, patient and advocate. She earned her Bachelor’s in Science and Nursing from Boston College. She is highly skilled Registered Nurse with 30 years’ practical experience in various departments within the hospital and home setting. She is utilizing her expert nursing skills as a medical center specialist, clinical nurse liaison and educator to bridge the gap between patients and the cannabis community. Sherri has been educating and implementing holistic integrative healing modalities within her practice for over 20 years. She educates on the endocannabinoid system and the safe utilization of cannabis at dispensaries, hospitals, clinics, patients’ homes and she regularly does pop up events, seminars and expos. Sherri is an international speaker and she has contributed to the writing of the first cannabis nursing textbook with her cannabis nurse colleagues that will be available in nursing schools across the country. Sherri is a member of the American Cannabis Nurses Association and founding member of The Cannabis Nurses Network and was nominated as one of two nurses for “Health Professional of the Year” for the 2020 New England Cannabis Convention. Sherri brings passion and purpose to her work teaching bio-psycho-social-spiritual healing using cannabis as a tool.

Background History- Pseudomembranous Colitis: 21:55

From Being a Nurse to Being a Patient: 24:00

Polypharmacy Journey: 25:34

Medical and Pharmaceutical Trauma: 27:04

Drain of Despair: 29:02

Cannabinoid Therapeutics Comes to the Rescue: 29:49

Full Podcast Episode with Sherri Tuktus: https://tsctalks.com/sherri-tutkus-2/

https://greennursegroup.com/,  https://iriebliss.com/

 

Dedee Culley: Has over 20 years of nursing experience and is the co-owner of 2 Leaf Nurses, which provides alternative & holistic health services from Springfield, Missouri. Culley loves home health for its opportunity to connect with patients and their environment. She is incredibly blessed and she was able to gather up courage and strength to pursue her passion in nursing while stepping out of the ordinary medicinal ways of these modern days and encourage others to be safe and successful at taking care of their bodies from the inside out with natural approaches. She has a loving attitude and an open mind to seek and research various holistic methods to reach a significantly positive result. She has also dealt with personal health issues within her family and has seen significant changes when she chooses to ask questions and be in the loop of the available options and their side effects.

Background History: 30:22

First Time Questioning Medicine: 30:53

Don’t Apologize for Questioning: 34:27

Got Into Nursing: 35:06

Home Heath: 37:00

Full Podcast with Dedee Culley: https://tsctalks.com/podcast/show-notes/tsc-talks-guest-dedee-culley/

https://www.2leafnurses.com/

TSC Talks Guest Dedee Culley

TSC Talks guest Dedee Culley has over 20 years of nursing experience and is the co-owner of 2 Leaf Nurses, which provides alternative & holistic health services from Springfield, Missouri. Culley loves home health for its opportunity to connect with patients and their environment. She is incredibly blessed and she was able to gather up courage and strength to pursue her passion in nursing while stepping out of the ordinary medicinal ways of these modern days and encourage others to be safe and successful at taking care of their bodies from the inside out with natural approaches. She has a loving attitude and an open mind to seek and research various holistic methods to reach a significantly positive result. She has also dealt with personal health issues within her family and has seen significant changes when she chooses to ASK QUESTIONS and be in the loop of the available options and their side effects.
This is her background and mission:

TSC Talks Dedee Culley and Angela Huff

“I am a registered nurse for over 20 years now; a variety of backgrounds. And there came a point when I said, you know what, enough is enough, there’s more to our lives than just ‘the doctor said’, and we do this and we do that. We need to be able to heal our own bodies and we need to work on our own bodies to get them healthy. So, I started a company called 2 Leaf Nurses. And our focus is on the education of patients, as well as businesses, healthcare professionals (our own health care professionals have to have education, bless their hearts), as well as the community. That’s what we really focus on, empowering everybody.”

Whenever I meet someone that’s in the cannabis industry from, you know, more than Midwest, I’m like, it’s got to be a whole different. You know, different, awkward struggle just to get to be legit and it’s hard anywhere just because we’re so ingrained in our way of understanding medicine that it’s hard to get back and I think that as Culley shares her story, what I found is the people that are in the industry is particularly the great nurses. I’m so grateful. I asked her about what made her take this approach:

“So yes, I am in southwest Missouri. We are seven generations deep in this area. My great-great-grandma was actually known as a medicine woman around here because one we didn’t have a whole lot of doctors and those doctors cost money which our farmers didn’t have. So I spent a lot of time with my grandma, and we had to utilize plants and things that we would now call ‘alternatives’. It opened up a world for me that just seemed natural. My grandma used rosewater and glycerin. And so those were all normal to me. It just was normal.”

Dedee Culley says she realized that there are two types of people, the ones that accept what the doctors say and what they say goes, and the ones that question things and wonder if there are better ways to go about something. She is definitely the type that questions, and wonders, and researches and tries to find the best way to solve something and the best way to certainly narrow down a diagnosis. She stated:

“People like me who go, ‘Well, wait a minute, why are we doing this? Why do we have to do that? Why do we have to cut both ends off a ham when we cook it? Why do we do that?’ Those are the kind of things I’m always asking. And I always have gotten in trouble many times for asking why. People take that as you are questioning them, you’re questioning their integrity and their character and their knowledge. And I’m like, no, I’m just asking the question. Because when we get right down to it, there might be another way.”

A doctor once told her to not apologize for asking questions. She was motivated to do so and to dig deeper every time.
She expected to have a simple life, ‘get married, raise a family, and bake some cookies’. But for her, there was more to life than that. She witnessed a cousin have a seizure, and she started asking questions… how, why. While at the time they could only do so much, they blamed immunizations. Her grandmother also helped her see alternative methods other than hardcore pills and medicines. While her grandmother had to be hospitalized for Alzheimer’s, her grandmother had to be knocked out because she was so agitated. But while she could visit, she felt a deep connection with her grandmother since she was able to calm her down with only the touch of her palms. She goes on to explain another amazing experience she had with her grandmother, “She’d be incredibly agitated. I could sit down on the couch, hold her hand, and we would just rub hands. And to this day, I can still feel that and she was totally calm. And she would look at me and I could see grandma. And I know there was that connection. I took a doll… She always took care of all of the babies in the family, all of the kids. So I took a baby doll up there. And she held that baby and she would feed that baby and she would cuddle and calm her down immediately. So no medications were required. You know, they didn’t have to do all of those things. And it proved to me how it improved the quality of her life.

“But it made me question, Why do we do this? And then, of course, that was the thing that took me into nursing. That thing that the doctor told me, don’t ever stop asking questions, that’s how we learn, you know, and encouraged me. When I got into the hospital I was told, ‘No, you don’t ask questions. We are the doctors.’ So I got that message. It wasn’t long after I started in the hospital, I was probably two or three years into the hospital.”
On their fifth anniversary, her husband was diagnosed with Stage 4 Glioblastoma. She goes on to share this tangible experience: “This is someone who is crazy healthy at the time he was diagnosed. He was actually training for a military marathon with his brother, he was in the Air Force. My husband is 26 years in the Army, and they were going to do a military marathon. And then this boom, all of a sudden seizures happen and we get this diagnosis. So we got that diagnosis after our five year anniversary. And I thought, ‘you know what, I’m just not cool with all of it, really. I need some other answers.’ And so I began asking why. I started really digging deep and do the research. And cannabis was the only thing that really has shown promise because it’s able to penetrate the blood brain barrier. It’s very selective in what it works synergistically with you. So there’s a synergy between the brain cancer and the THC that it creates an environment that kills cancer cells. Yet it doesn’t kill the good cells. I’ve read it also has this ability to help with the generation and regeneration of some of the healthy brain cells. So, that’s huge.”

In the midst of all these experiences, she found out about cannabis nursing (ACNA). She goes on to explain 2 Leaf Nurses:

“So one of the things that we do at 2 Leaf nurses is not only teaching the body how It’s designed to work. Well, what happens when it doesn’t? And when you understand how your body is supposed to work, and you understand what happens when it doesn’t, it also makes it much easier to understand how cannabis, or anything else, other supplements, other plants, and diet, how that may or may not help you, right? And I always say there are always those caveats that you can’t do it. You know, they’re just, they’re just a certain kind of thing. So we learn about that, but then we take you to the next step of figuring out what you want, what you need, okay? Okay. I can’t tell you that you need to smoke a flower. I can’t tell you. You need to use a tincture. I can’t tell you those things. Only you can make those decisions, right? You just need to be educated about what those things are.”

As an incredible nurse with a passion for others, her own family structured her path to find holistic approaches, which indeed gave her and her family hope for a better life.

“When you’re looking at things holistically, it’s not one thing; you have to look at the whole picture. So mind, body, and soul. So I have to think about his exercise, keeping him out getting him good energies, keeping his spirits up, giving him hope, and encouragement, but we also have to be cognizant of our diet and what we consume and the supplements and things like that. So, it’s been a very, very broad approach. And I will say that for me to start a business, most of it was not in my game plan. I would have just assumed, ‘just stayed back and taking care of him, and let’s call it good.’ That’s not the way it was supposed to go apparently. And you know, a lot of the things that I have done, all started falling into place and wondering what I was supposed to do how I was supposed to do it. It all fell into place. And you know what? I just have to keep helping people. That is my calling, to help and to empower and educate people. So, there we have it.”

TSC Talks guest Dedee Culley

Facebook: https://www.facebook.com/2-Leaf-Nurses-111026430353251/
Instagram: https://instagram.com/2leafnurses?igshid=8zsfxtspce75
LinkedIn: https://www.linkedin.com/in/2-leaf-nurses-477b49196/
Email: info@2leafnurses.com

Thank you Dedee for sharing your story!  All of our podcasts can be found at https://tsctalks.com/podcast/

TSC Talks Guest Leigh Carr

TSC Talks guest Leigh Zarda Carr, R.N., BSN, is a mother of 2, business owner, Chairman of the Board of Directors at Bleeding Kansas Advocates, Contributing Writer at The Evolution Magazine and Cannabis Nurse Consultant at Kansas City Cannabis Company. The name of her business is Hari Om Hemp. “It began as an idea when both Leigh and her husband, Dustin, noticed the many benefits that Leigh saw from CBD herself. It was not until Dustin and Leigh’s son was diagnosed with special needs that they really found the need to start their own CBD company when they could not find one that was open and honest as they would like.”

Leigh shares the experience she had with her son who stopped talking, stopped walking correctly, he kept falling over, he stopped eating the foods he loved, and his behavior completely and radically changed following his 15 month vaccines. Leigh followed the pediatrician’s recommendations, sought various therapies, many not covered by insurance and continued to hope that her son would start to improve. That did not happen despite brush offs from her doctor who kept telling Leigh, that “he is a boy and boys are different”. Finally, at the end of her rope, she began to dig deeper and do her own research which led this nurse, extensively trained in traditional medicine, to question everything she had been taught. Leigh has had the lived experience working in traditional medicine, spent time doing pharmaceutical research, and worked in an ER for quite a while.  Her last bedside nursing job was at a very prestigious hospital in the Kansas City area in a pediatric unit, doing well child visits for an entire year and she was trained on vaccines. I am sharing Leigh’s Facebook post from March 31st, 2020, the 5 year anniversary of her son receiving his 15 month vaccinations here and following this post is a list of resources that can be found publicly related to vaccines and topics mentioned in our interview. I am glad to report that after breaking away from traditional medicine, Leigh found a combination of treatments and therapies in the alternative medicine that have helped her son significantly. At his last IEP meeting she reported that he no longer qualifies for any services but speech!

Leigh wants to emphasize, “this is not to attack those that do vaccinate and not to attack me who I have chosen not to continue to vaccinate mine for medical reasons. This is a post to hopefully wake a few people up to the harmful dangers of vaccines. Please don’t find out your child has the MTHFR gene mutation the way I did. Do your homework and make sure you have informed consent and ask for the vaccine insert the next time you are at your pediatrician’s office and look at this list of side effects, again another thing I was not shown nor taught in nursing school.”

“Thank you to all those who wished me a Happy Birthday yesterday but this birthday was different for me this year. Yesterday I was reminded in my timehop of the day that will permanently be in my head forever. I’ve thought about how I would say this a million times but it never gets easier to tell a story that has caused you so much pain and suffering. On March 31st of 2016, 5 years ago, my husband and I took our son into his WELL child visit for his 15 months vaccines, little did I know that this would be the beginning of a really long road ahead of us.

Within 3 months after my son’s vaccines he stopped talking words he knew how to communicate simple words like dog, hi and bye, he stopped eating foods he loved and would request, his balance became weak and he would fall over all the time.

What unfolded over the next two years was mind boggling and I will not go into detail how many doctors we saw and how much money we spent on out of pocket therapies but it was 5 figures.
There were two times I went to the pediatrician telling him that something was wrong and different with my child and both times I was told he is just a boy and that boys are hyper and are picky eaters. Well he was wrong. My son was not a picky eater prior to his 15 month vaccines and he was the sweetest kindest most loving little boy.

As a mother and a nurse I dug deeper for answers, scientific answers because that is my training to look at double blind placebo studies and credible sources.. I wanted to know why my son had 8 ear infections within one year after his 15 month vaccines and why he no longer could talk and why we were in speech therapy and still are to this day. What I have uncovered since keeps me awake at night, makes me question all my training that I had as a nurse and how we were taught and drilled in our heads that vaccines are safe and effective. I went on to find out that Vaccines were anything but that and have not been studied for the last 30 year and that all manufacturers are protected from any law suits. Had they been safe I would not be where I am today telling the story I am. Not only have they not been studied but do yourself a favor and take a look at the ingredients in them. Your mind will be blown just like mine, again not something we are ever taught about in nursing school nor during my training on vaccines at a pediatric office (a very well known and prestigious one).

This post is not to attack those that do vaccinate and not to attack me who I have chosen not to continue to vaccinate mine for medical reasons. This is a post to hopefully wake a few people up to the harmful dangers of vaccines. Please don’t find out your child has the MTHFR gene mutation the way I did. Do your homework and make sure you have informed consent and ask for the vaccine insert the next time you are at your pediatrician’s office and look at this list of side effects, again another thing I was not shown nor taught in nursing school.

I wish you all the best and want nothing more than to see children succeeding in schools and free of pharmaceuticals. If you are someone you know resonate with this post please reach out. I am here to talk, here to listen, here to help, my ears and arms are open. There is so much more to our story and I plan to share it with you all. Nolan has been on a long road to healing his injury and we are so hopeful in his healing journey. We actually even had his IEP meeting this week and were told he no longer qualifies for any services but SPEECH! This is amazing and we are so excited by the leaps and bounds he is making and cannot wait till the day that we can say he is healed! Hari Om” ( Hari Om is a famous Sanskrit mantra thought to erase all suffering. It allows the individual speaking it to remove their personal suffering and reconnect with the universal consciousness. Hari means “the remover” and refers to the one who removes troubles, blockages, pain and bondages.) https://www.yogapedia.com/definition/7560/hari-om

Resources:

Ingredients.
1. https://www.cdc.gov/vaccines/pubs/pinkbook/downloads/appendices/B/excipient-table-2.pdf

2. Compensation for vaccine injury to date: $4,297,913,380.97 and counting…
https://www.hrsa.gov/vaccine-compensation/data/index.html

3. VAERS site for vaccine injury.
https://vaers.hhs.gov

4. Stipulated Order Proving CDC Has No Studies To Support Claim That Vaccines Given in First 6 Months of Life Do Not Cause Autism https://www.icandecide.org/wp-content/uploads/2020/03/Stipulation-and-Order-Fully-Executed.pdf

5. HHS lawsuit that shows no safety studies have been conducted on vaccines for 32 years.
http://icandecide.org/government/ICAN-HHS-Stipulated-Order-July-2018.pdf

6. 1986 National Childhood Vaccine Injury Act that shields vaccine manufacturers from liability.https://www.congress.gov/bill/99th-congress/house-bill/5546

7. Supreme Court rules vaccines,
“unavoidably unsafe.” https://www.supremecourt.gov/opinions/10pdf/09-152.pdf

8. Stipulated Order Confirming Non-Compliance With 42 USC 300AA-27C https://www.icandecide.org/wp-content/uploads/2019/09/Stipulated-Order-copy-1.pdf

9. The Health Resources and Services Administration Vaccine Injury Table https://www.hrsa.gov/sites/default/files/vaccinecompensation/vaccineinjurytable.pdf

10. Stipulated Order Showing FDA’s Off-Label Use of Vaccines During Pregnancy https://www.icandecide.org/wp-content/uploads/2019/11/ICAN-v-FDA-Resolved-Court-Filed-Copy-Copy.pdf

11. Stipulated Order Confirming Non-Compliance With 42 USC 300AA-27C https://www.icandecide.org/wp-content/uploads/2019/09/Stipulated-Order-copy-1.pdf

Leigh’s links:
https://www.linkedin.com/in/leigh-zarda-carr-bsn-rn-895a8113/
https://www.facebook.com/leigh.zarda
https://www.facebook.com/hariomhemp/
https://www.instagram.com/holisticmamacarr/
https://www.instagram.com/hariomhemp/
https://mogreenway.com/2019/05/15/women-to-watch-leigh-zarda-carr/
http://evolution-mag.com/about-us

https://www.greenwaymo.com/2020/03/hari-om-hemp-most-creative-cbd-company/

https://www.proathleteinc.com/blog/2019/7/3/speaker-series-recap-hari-om-hemp

All of our podcasts can be found at https://tsctalks.com/podcast/

TSC Talks A 420 Compilation

In this Special Edition 420 Compilation, we share some favorite audio clips from several of our past guests on the 20th of April, 2020!

First up is Sherri Tutkus, RN, BSN~Founder and CEO of GreenNurse Group, Medical Director of Irie Bliss Wellness and host of GreenNurse on the Go Radio Show.

1. Sherri is a cannabis nurse, patient and advocate. Sherri earned her Bachelors in Science and Nursing from Boston College. She is highly skilled Registered Nurse with 30 years practical experience in various departments within the hospital and home setting. She is utilizing her expert nursing skills as a medical center specialist, clinical nurse liaison and educator to bridge the gap between patients and the cannabis community. Sherri has been educating and implementing holistic integrative healing modalities within her practice for over 20 years. She educates on the endocannabinoid system and the safe utilization of cannabis at dispensaries, hospitals, clinics, patients homes and she regularly does pop up events and expos.

Sherri is a member of the American Cannabis Nurses Association and the Cannabis Nurses Network and she brings passion and purpose to her work teaching bio-psycho-social-spiritual healing using cannabis as a tool. https://greennursegroup.com
Shari’s episode on TSC Talks: https://tsctalks.com/sherri-tutkus/

2. Keith Stroup, Mr. Keith Stroup is a Washington, DC public-interest attorney who founded NORML in 1970. Stroup obtained his undergraduate degree in political science from the University of Illinois in 1965, and in 1968 he graduated from Georgetown Law School in Washington, DC. Following two years as staff counsel for the National Commission on Product Safety, Mr. Stroup founded NORML and ran the organization through 1979, during which 11 states decriminalized minor marijuana offenses.

Stroup has also practiced criminal law, lobbied on Capitol Hill for family farmers and artists, and for several years served as executive director of the National Association of Criminal Defense Lawyers (NACDL). https://norml.org
Keith’s episode on TSC Talks: https://tsctalks.com/tsc-talks-guest-keith-stroup/

3. Nikki Lawley~Nikki Lawley, Cannabis Advocate and Educator

Traumatic brain injury stole my joy, but cannabis returned it.

Nikki, a NY state resident, has always been a proud and diligent worker. She’s served as an HVAC filtration salesperson, later starting her own company, then as a casino dealer, and most recently, as a pediatric nurse. She had suffered two traumatic brain injuries during her younger years, but it was the third TBI that suddenly changed everything. In a heartbeat, her life changed from one of optimism, vibrancy, enthusiasm, confidence, and extroversion, to one of constant pain, withdrawal, depression, and hopelessness.

While trying to help administer a routine vaccine to a young boy, Nikki was thrown against the wall, suffering a significant TBI and cervical instability in the process. Nikki’s TBI has caused cognitive deficiencies, confusion, memory loss, anxiety, and pain. She found herself unable to work, unable to interact with others, and in a very dark place. None of the numerous traditional medications she’s tried helped, and if fact, their ghastly side effects left her even worse off.

She had long since reached the end of her rope, when, on a whim, figuring she had nothing more to lose, she turned to cannabis. https://linktr.ee/Nikkilawley
Nikki’s episode on TSC Talks: https://tsctalks.com/tsc-talks-guest-nikki-lawley/

4. Mike Robinson~Mike Robinson, the founder of the Global Cannabinoid Research
Center in Santa Barbara California, is a multiple Cancer survivor that’s used cannabis oils and CBD extensively as well for Severe epilepsy, Chronic Lyme Disease, PTSD, and in pain management. Over the last 6 years Mike has shared his journey and analytics on cannabinoid medicine research globally while assisting patients and helping to teach clinicians globally. Mike is the former Director of Consumer Affairs and Communications at The American Academy of Cannabinoid Medicine. His post grad education, however is not in cannabis or cannabinoid medicine, rather it’s focus was International Relations and Diplomacy. Robinson has an extensive history of leading a large compassion program that provided countless disadvantaged cannabis patients with various alternative protocol treatments, is a published journalist and international cannabinoid research specialist, is a former registered Civil Rights lobbyist and non attorney that represented countless disabled children pro bono nationwide for over 2 decades. He’s a past board member of Big Brothers and Sisters, the founder of multiple non profits for disabled children, and is well known for adopting a severely disabled child, Genevieve, from the compassion program he once ran.

Read Genevieve’s Journey in High Times: https://hightimes.com/culture/genevieves-journey-how-cannabis-helped-save-life-create-family/
https://mikesmedicines.com, https://globalcannabinoidrc.com, https://genevievesdream.com, https://carouselchallenge.com

Thanks for listening! If you liked what you heard, please write us a review on any of the following platforms:
https://www.facebook.com/pg/tsctalks/reviews/
https://podcasts.apple.com/us/podcast/tsc-talks/id1438344290

TSC Talks guest Liz Minda and Mike Robinson Pt 2

TSC Talks guest Liz Minda and Mike Robinson Part 1

In this episode of TSC Talks, I spoke to Liz Minda, RN and Mike Robinson, former TSC Talks guest, drops in for the second half of our conversation. Liz has three children, one of whom has significant special needs and issues related to epileptic seizures. Liz strongly believes her daughter’s issues are pharma injuries and we discuss that and the treatment protocol. Liz had her children later in life; her son was born when she was 48 and her twin daughters were born when she was 50. She had normal uneventful pregnancies and her children were all born healthy. All was well until, at 18 months old, one of her daughters developed a fever after her MMR/DPT vaccine. That was when she had her first seizure.

Liz’s daughter had no further seizures until she was 4. When the seizures came back, they were severe grand mal status epilepticus seizures. Liz hesitated to medicate her daughter because as an RN, she was aware of the difficulty of finding an effective medicine as well as the myriad of side effects anti-seizure meds can cause. When the seizures continued, they eventually started meds which began a cycle of seizures increasing in both frequency and duration. In addition to meds, they put the child on the ketogenic diet. The grueling regimen did not help her seizure activity. Liz was desperate after even the rescue med Diastat began to fail to control the seizures.

Liz got her daughter into the Epidiolex study at Mass General and her daughter’s seizures diminished for a few months, but they returned. When the seizures started again, doctors increased her pharmaceuticals which restarted the med, seizure pattern. Liz grew frustrated with the medical establishment who seemed determined to throw prescription after prescription at them at great financial, physical and emotional cost. She found a neuro-epileptologist who helped her begin weaning her daughter from some of the prescription meds and helped her transition to Charlotte’s Web.

Liz connected with Mike Robinson online and Mike and others in the Compassionate Cannabis world assisted Liz in finding a balanced cannabinoid medicine that worked for her daughter. Mike and Liz discuss Epidiolex and the pharmaceutical interactions which do not seem to be compensated for when using that med. Liver issues can be serious when Epidiolex or any type of CBD is combined with certain medications. Mike shares, “Even though we were using the Charlotte’s Web, Charlotte’s Web wasn’t enough to help us get off. We needed something stronger. We needed the Rick Simpson oil or full extract cannabis oil to get her off. Because we only had you know, once you get down to the minuscule doses of the pharmaceuticals, now you’re really up against you know, fighting seizures, because you go with a really slow business and that’s pretty much where we’ve stepped in, you know, it’s right with the actual compassion provision.”

Both Mike and Liz believe vaccine injury is real. We ask you to keep an open mind while listening. Before you form an opinion, walk a mile with Liz and Mike, hear their stories and then decide. Liz comments, “and then people say, vaccines don’t cause autism? Yes, they do, and here’s why. When the brain heats up and you get a fever, you’ve got brain on fire” and she believes that “brain on fire” condition causes both seizures and autism.

TSC Talks is presenting this narrative and these views do not necessarily represent the views of TSC Talks. We are encouraging you as listeners, to “walk a mile” in Liz’s shoes and understand the vast variability in the human genome which calls for a far more personalized approach to medicine than is currently the status quo.

Liz’s Links:
https://en.wikipedia.org/wiki/Brain_on_Fire
LinkedIn: https://www.linkedin.com/in/liz-minda-98b9b1126/
Facebook: https://www.facebook.com/profile.php?id=100011148612874
https://www.mikesmedicines.com/medical-marijuana/liz-minda-and-her-fight-for-jadyn-cannabis-for-epilepsy/
https://herb.co/news/health/rhode-island-cbd-school-minda/
https://digboston.com/medical-cannabis-special-treating-yourself/
https://www.wpri.com/news/special-reports/family-fights-to-change-law-says-medical-cannabis-should-be-administered-in-school/

Mike’s Links:
https://mikesmedicines.com
https://globalcannabinoidrc.com/
https://carouselchallenge.com
https://genevievesdream.com
https://nanobles.com
LinkedIn: https://www.linkedin.com/in/mike-robinson-~-cannabis-heals-256b3192/
Facebook: https://www.facebook.com/MikesEpilepsy
Instagram: https://www.instagram.com/cannabismymedicine/
Twitter: https://twitter.com/MikeRob47354384, https://twitter.com/MikeRob23307223
https://hightimes.com/culture/genevieves-journey-how-cannabis-helped-save-life-create-family/
https://www.imedpub.com/proceedings/cbn-the-cancer-fighting-cannabinoid-5528.html

Thank you Liz and Mike for this valuable discussion.  You can find all of our podcasts at https://tsctalks.com/podcast/