TSC Talks Guest Liz Minda & Mike Robinson Pt 1

TSC Talks guest Liz Minda and Mike Robinson Part 1

In this episode of TSC Talks, I spoke to Liz Minda, RN and Mike Robinson, former TSC Talks guest, drops in for the second half of our conversation. Liz has three children, one of whom has significant special needs and issues related to epileptic seizures. Liz strongly believes her daughter’s issues are pharma injuries and we discuss that and the treatment protocol. Liz had her children later in life; her son was born when she was 48 and her twin daughters were born when she was 50. She had normal uneventful pregnancies and her children were all born healthy. All was well until, at 18 months old, one of her daughters developed a fever after her MMR/DPT vaccine. That was when she had her first seizure.

Liz’s daughter had no further seizures until she was 4. When the seizures came back, they were severe grand mal status epilepticus seizures. Liz hesitated to medicate her daughter because as an RN, she was aware of the difficulty of finding an effective medicine as well as the myriad of side effects anti-seizure meds can cause. When the seizures continued, they eventually started meds which began a cycle of seizures increasing in both frequency and duration. In addition to meds, they put the child on the ketogenic diet. The grueling regimen did not help her seizure activity. Liz was desperate after even the rescue med Diastat began to fail to control the seizures.

Liz got her daughter into the Epidiolex study at Mass General and her daughter’s seizures diminished for a few months, but they returned. When the seizures started again, doctors increased her pharmaceuticals which restarted the med, seizure pattern. Liz grew frustrated with the medical establishment who seemed determined to throw prescription after prescription at them at great financial, physical and emotional cost. She found a neuro-epileptologist who helped her begin weaning her daughter from some of the prescription meds and helped her transition to Charlotte’s Web.

Liz connected with Mike Robinson online and Mike and others in the Compassionate Cannabis world assisted Liz in finding a balanced cannabinoid medicine that worked for her daughter. Mike and Liz discuss Epidiolex and the pharmaceutical interactions which do not seem to be compensated for when using that med. Liver issues can be serious when Epidiolex or any type of CBD is combined with certain medications. Mike shares, “Even though we were using the Charlotte’s Web, Charlotte’s Web wasn’t enough to help us get off. We needed something stronger. We needed the Rick Simpson oil or full extract cannabis oil to get her off. Because we only had you know, once you get down to the minuscule doses of the pharmaceuticals, now you’re really up against you know, fighting seizures, because you go with a really slow business and that’s pretty much where we’ve stepped in, you know, it’s right with the actual compassion provision.”

Both Mike and Liz believe vaccine injury is real. We ask you to keep an open mind while listening. Before you form an opinion, walk a mile with Liz and Mike, hear their stories and then decide. Liz comments, “and then people say, vaccines don’t cause autism? Yes, they do, and here’s why. When the brain heats up and you get a fever, you’ve got brain on fire” and she believes that “brain on fire” condition causes both seizures and autism.

TSC Talks is presenting this narrative and these views do not necessarily represent the views of TSC Talks. We are encouraging you as listeners, to “walk a mile” in Liz’s shoes and understand the vast variability in the human genome which calls for a far more personalized approach to medicine than is currently the status quo.

Liz’s Links:
https://en.wikipedia.org/wiki/Brain_on_Fire
LinkedIn: https://www.linkedin.com/in/liz-minda-98b9b1126/
Facebook: https://www.facebook.com/profile.php?id=100011148612874
https://www.mikesmedicines.com/medical-marijuana/liz-minda-and-her-fight-for-jadyn-cannabis-for-epilepsy/
https://herb.co/news/health/rhode-island-cbd-school-minda/
https://digboston.com/medical-cannabis-special-treating-yourself/
https://www.wpri.com/news/special-reports/family-fights-to-change-law-says-medical-cannabis-should-be-administered-in-school/

Mike’s Links:
https://mikesmedicines.com
https://globalcannabinoidrc.com/
https://carouselchallenge.com
https://genevievesdream.com
https://nanobles.com
LinkedIn: https://www.linkedin.com/in/mike-robinson-~-cannabis-heals-256b3192/
Facebook: https://www.facebook.com/MikesEpilepsy
Instagram: https://www.instagram.com/cannabismymedicine/
Twitter: https://twitter.com/MikeRob47354384, https://twitter.com/MikeRob23307223
https://hightimes.com/culture/genevieves-journey-how-cannabis-helped-save-life-create-family/
https://www.imedpub.com/proceedings/cbn-the-cancer-fighting-cannabinoid-5528.html

Thank you Liz and Mike for this valuable discussion.  You can find all of our podcasts at https://tsctalks.com/podcast/

 

TSC Talks guest Liz Minda

TSC Talks~The State of Birth

TSC Talks about the State of Birth.

I had the honor of speaking to three accomplished women about the current state of birth both locally and nationally. We discussed the increasing interest in home births, the advantages and disadvantages of home versus hospital births and how those expecting, or expecting to be expecting, can best prepare especially with the extra consideration of Covid19.

Corrine Pelland is an Empath, Psychic Medium and Reiki Master. She is also a mom of two and tells us about her experience of both a hospital birth and an at-home birth. Corrine discusses the lack of control over the birthing experience that she experienced with her first child. She discusses being considered high risk because of her age and weight and how the entire birth experience was centered around preconceived notions based on the masses and not her individually. She was induced, unnecessarily in her view, was sick from the drug used to induce and delivered by cesarean section. She shares, “It was traumatic, and my healing my first two months of being a mother was physically painful and my anxiety post, I had postpartum anxiety to a very severe degree.” When Corrine became pregnant again, she knew she wanted a different birthing experience. She found Birth Matters and decided to try a natural, vaginal delivery at home.

Jodi Churchill Chapin has been a Registered Nurse for 32 years, most of which she has spent in Labor and Delivery. Jodi discusses bridging the traditional birth and hospital procedures with less traditional therapies such as Reiki. Jodi states, “And we incorporated, you know, you’re there, you’re exchanging energy. It’s how the patient uses her energy and is able to focus on the birth process. And I think what’s important is that being able to balance, you know, following policy and procedure, but also carrying out the patient (and) the family’s wishes of how they envisioned birth. I mean birth is, you know, one of those things, it’s like, even planning a wedding, you look forward to this one day you plan you plan you plan, you think it’s going to go one way and then plans change on a dime. And how it’s handled can make it or break it.”

Jessica Petrone is a Certified Professional Midwife (CPM), RN and BSN who has been in practice for 13 years. Her practice saw a record number of home births last year and Jessica believes that number will continue to grow. She relates, “But I think specifically in the last couple of years, there seems to be a shift in people just taking charge of their health care even in the medical setting. There’s more conscious awareness, practices and practitioners breaking away from the traditional systems and framework but yeah, we love home birth. We do a lot of water birth we work with a lot of different practitioners to enhance really healthy pregnancies. We absolutely consult with medical providers when it’s necessary.” Corrine shared about her experience with Jessica and Birth Matters, “So, I will say one of the biggest differences that I noticed on my very first appointment with a Birth Matters in the home birth midwives is they asked my consent, which nobody asked my consent. I mean, sure I signed forms but before touching me, nobody offered before examining me, nobody asked permission to touch my body.”

The conversation continues to the state of birth currently with the threat of COVID19. Jodi discusses the difficulty of taking the necessary precautions in the time of a pandemic while trying to connect with an expectant mom during the labor and delivery process. “This Covid19 has put a huge damper on healthy women wanting to come in to have their normal birth. Especially right now, today. Anybody and everybody walking into the hospital or around the hospital has to wear a mask. You cannot take that mask off anytime you are on hospital property that includes in the labor room, that includes the patient that includes the patient’s one person that’s helping them with birth, there are no visitors allowed, no children, family, nobody else. The only person allowed in the room is the one that will be wearing that second baby bracelet that’s given out when a baby’s born. I mean, labor, you’re breathing with women, you’re teaching. I mean, it’s all about the closeness. How do you socially distance yourself from somebody who needs your support, your encouragement, your empowerment?”

Jessica discusses the fact that more women are considering home births currently. “The influx of inquiries is so unexpected, I can’t keep up. I’m getting probably 10 emails a day, which it is impossible for us to entertain the idea of taking all these women on. And that’s true of a lot of midwives across the state, really. Not everybody is a good candidate. I mean most people probably inquiring last minute. We had yesterday, a woman inquire and she’s due March 30. That’s like, less than a week from now. If people are making choices out of fear and panic it is not what’s happening, and whenever we get an inquiry that somebody is so afraid of the hospital and so afraid of other providers and afraid of needles, I mean, we all encounter that in patient care, but they may not be a great candidate. But that’s not what’s happening right now. These are women that are realizing that their birth plan, what they thought they were going to experience in the hospital, is drastically different and there is obviously a great concern about becoming sick and being exposed but a lot of the women are making the choice based on the fact that their support person might not be able to be present with them.” Jessica recommends that women do their research before opting for a home birth.
I am grateful to these remarkable women for sharing their wisdom.

Corrine Pellard is an Empath and a Psychic Medium. Even as a small child, Corrine has had a special insight into other people’s emotions. Beginning in her early teenage years, her intuition would alert her when something important was about to occur, either for herself or a loved one. At age 14, Corrine began using the wisdom of Tarot Cards to enhance her psychic connection. As years went on, Corrine became more aware of her ability as her readings became more accurate and her predictions began to materialize. At the age of 30, she began having premonition dreams. After seeking the guidance of her Shaman, she came to accept that she is an Empath & an Intuitive. Corrine is a natural healer, using her Empathy, Intuition, and Reiki to heal others emotionally, spiritually, and physically. Corrine is also able to mediate communication between people who are no longer living to those who still are. She offers private readings and hearings and in-home parties. She is a wedding officiant offering custom designed ceremonies. Her true passion is teaching others to honor their own abilities and helping others heal themselves.
Beyond the Gate
508-690-0444
gobeyondthegate@gmail.com
https://www.gobeyondthegate.com/
https://www.buzzsprout.com/865777/2868628-sobriety-as-an-empath-corrine-s-story

Jodi Churchill Chapin has been a Registered Nurse for 32 years. She has an extensive background in women’s health as a labor and delivery nurse and has also worked in oncology. She resides in Framingham with her husband of 25 years. Together, they have 3 children ranging from middle school age to college, 2 dogs, 2 cats and a bunny named Kiwi. Jodi firmly believes that vulnerability is to be met with compassion, respect, and active listening to ensure that her patients have the very best outcomes. She credits her extensive nursing career and healer background with these virtues and skills. Jodi is also a Usui Shiki Ryoho Reiki Level II Practitioner. Through this healing art, Jodi may be able to help people who are struggling with a wide range of health conditions such as headaches, insomnia, back pain, cancer, heart disease, chronic pain, depression, anxiety, and may even be used to help in the recovery from injuries and surgery. As an active member of the American Cannabis Nurses Association and a GNG team member, she helps advocate for people who choose to use cannabis as a complementary or alternative treatment, providing education, insight, guidance, and support in the process.
https://www.greennursegroup.com/our-team
https://www.emedevents.com/speaker-profile/jodi-churchill-chapin
https://green-nurse-sandbox.iriebliss.com/green_nurse_staff/jodi-chapin/

Jessica Petrone, CPM, RN, BSN
Jessica’s experience in birth includes her work as a Doula, her completion of a 3 year midwifery apprenticeship in a very busy home birth practice and being a mother of four, with the last being an unassisted home birth attended only by her husband and herself. Her own births led her to become a doula which led her to become an apprentice and, in turn, a midwife. But that’s the abbreviated version! Jessica has been attending home births since 2006. She is co-president of the Massachusetts Midwives Alliance, a member of ALACE (Association of Labor Assistants and Childbirth Educators), and a member of the Birth Year Network (a Southeastern Mass, Cape and Islands Birth Resource Network). She holds certifications in CPR and Neonatal Resuscitation. She completed her formal education remotely through the National College of Midwifery in Taos, New Mexico, where she earned a degree in the Science of Midwifery. Most recently, Jessica has completed a Bachelor of Science in Nursing, which included a 6-month preceptorship in a high volume/high risk maternity unit at Massachusetts General Hospital.
https://homebirthmatters.com/about/jessica-petrone/
https://www.modernmamamidwifery.com/the-midwives
http://bostonvoyager.com/interview/meet-jessica-petrone-sarafina-kennedy-birthmatters-llc-boson/
Supplemental Article:
https://nypost.com/2020/03/23/pregnant-women-share-what-its-like-to-be-expecting-during-coronavirus-pandemic/

All of our podcasts can be found at https://tsctalks.com

tsc talks the state of birth