TSC Talks! Final podcast~Wrapping it Up & Thanks

Jill wraps up the podcast! I started in 2016 by interviewing my kids and how they were affected by Tuberous Sclerosis Complex. It was absolutely divine inspiration from the start and branched out shortly after to interviewing community members and other professionals who worked with those affected. From there, I explored many different topics, providing information and resources in interview form, all with relevance to the individuals and/or parents/caregivers affected by a chronic illness like TSC.

Pushing the boundaries of what was deemed “safe and effective” by our medical system, I continued to put the info out there based on my own lived experience as a parent/caregiver living and dealing with what I’d come to discover is CPTSD if you want to use a label. It was my vision and still is that all “remedies” for improving the quality of life of all involved in the wheels of chronic illness, particularly one such as TSC which affects all the vital body organs, will be an option for all.

Why should we hold back the river when there are so many speaking about how their lives have been impacted by sharing their truths, sharing what’s worked for them and what potentially might help another ease the very real and almost daily traumas of attempting to live with an open heart and navigate our inverted systems of care?

Many of these podcasts go against the grain of what people are comfortable hearing. There are always positive takeaways but there are some heavy heavy experiences that people are walking through and talking about and must be given voice. I think through honest conversation, and taking full responsibility for one’s reactions to other’s sharing from their most painful, heart-wrenching moments, we can begin to hear each other once again at least long enough to realize, we’re all having vastly different experiences yet we all long to be here now, safe, loved, whole, home.

Thanks for tuning in and being here there and everywhere. It’s been the pleasure of a lifetime to have the opportunity to create and share this work.

Love Jill

Special Needs Parents & Caregivers! Check out this discussion of Stem Cell Activating Patches!

An informational meeting on x39 stem cell activating patches and other patches offered by Lifewave. We were joined by Dr. Staci Holweger! Dr. Staci has had remarkable results using these patches personally and to help her own 19-year-old daughter with special needs and would like to reach out specifically to the special needs community about this technology. (https://www.drstaci.net/). I’ve personally had amazing results as has my special needs son (20 with Tuberous Sclerosis Complex/ADHD/anxiety/aggression) “Since 2004, LifeWave has helped people all over the world realize their greatest potential. Our patented, proprietary wellness products help to deliver more energy and stamina, mental acuity, better sleep, reduced stress, improved skin appearance, faster-wound healing, and an overall feeling of youthful vitality. Our products also help people reduce body fat and decrease pain.” https://startx39.com 

For more information~https://lifewave.com/jwoodworth to schedule a call~ https://calendly.com/tsctalkspodcast or email me~ pjlacy6@gmail.com

Points of Light~James Davis, Bay Staters for Natural Medicine, “Advocacy from the Heart”

I had the pleasure of interviewing James Davis recently on TSC Talks. As you’ll hear in the podcast, we connected a little over a year ago when he was just getting started with Bay Staters for Natural Medicine and looking for volunteers. At that time, I’d been experimenting with microdosing natural medicine for mental health reasons, it was helping, and I thought I’d jump in. Life pulled me away from that volunteer work, but James made a profound impression on me, and I had the notion that he’d be successful in whatever he endeavored, particularly his advocacy around decriminalization of plant entheogens, as his passion, kindness, and honesty just stands out. When we connected to do the podcast, I was not surprised, but also surprised by the progress he and the growing team of volunteers he leads has made over the past year. He hits it home on so many topics within this pod, I thought it best just to include the full transcript. Thanks, James, for showing up, being such a divine-human and inspiring, and leading many to make a difference. Enjoy the pod!

Links: https://www.baystatersnm.org/

https://linktr.ee/baystaters

https://www.instagram.com/baystaters/

https://www.facebook.com/BayStaters

https://twitter.com/baystaters

“James Davis is a leader of Bay Staters for Natural Medicine. They have mobilized over a thousand Massachusetts volunteers to decriminalize Somerville, Cambridge, Northampton, and Easthampton and have pending resolutions in Boston, Burlington (VT), Amherst, Worcester, Needham, Salem, and Medford. These resolutions decriminalize growing and selling plants like magic mushrooms, which reduce the risk of opioid addiction 55% after a single experience and have been proven to have statistically significant benefits for PTSD and depression. Their resolutions also end all controlled substance possession arrests, referring people for addiction treatment and committing our cities to invest in these services. In this episode, you will also learn about the other types of entheogenic plants and the power they hold to help us heal”

Here’s an excerpt from the transcript, the full transcript is available here~https://tsctalks.com/tsc-talks-james-davis-transcript/

James D: Thanks, James, thank you so much for having me, Jill. I’m really excited to chat and I am really [00:02:00] grateful for the support you showed for bay Staters.

When we were just a 10 follower Instagram group. We only started about a year and some months ago. And at that stage, We were just weirdos, emailing our city councils, sharing our stories with plant medicine. We took the philosophy that we didn’t need to fundraise a lot of money. We didn’t need to even have a website active to just start doing this advocacy work and start speaking from the heart.

And you know, what this has snowballed into is really, really awesome and beautiful and all the lessons we’ve learned along the way and advocacy. About the medicines themselves just from meeting so many people whose lives have been changed with this psilocybin experience or an MDMA experiment experience or an LSD experience.

So just really honored to be here and really glad that we met too. Yeah. Thanks. Yeah. To tell you a little bit more about who I [00:03:00] am. I know you mentioned all those credentials Yeah, they really don’t define who I am. I would say. So I, I grew up in Kansas in a trailer park that was on the wrong side of the railroad tracks.

So all the middle-class kids lived on one side a Walmart supercenter. And then I lived on the side that was mostly liquor stores and churches and run down streets. So. I was raised by my mom my biggest inspiration in life and she Growing up was always working multiple jobs to make ends me really inspire me to work hard as well.

And then she was dealing with a lot of intergenerational trauma herself. Her father’s had served in the Pacific theater, the Korean war and Vietnam. And. There was just a lot of, a lot of trauma that she had picked up from childhood and then relationships stemming from, from being a young woman and just growing [00:04:00] alongside her.

It really shaped me into the person I am today and made me really compassionate to help people who are struggling in poverty who have that intergenerational trauma. So that’s why I think fundamentally this line of work emerged from.

Jill W: That’s really beautiful. I know I’m sure that was not, it was a tough upbringing in a lot of ways, but I, yeah, just to have your mom, just to have that connection with your mom.

I, I remember when I first met you and I should say, I don’t know how our paths crossed specifically. Maybe through social media, but I ended up doing a little bit of advocacy work with James and I’ve had my own plant medicine experiences that have been transformational. Really. I don’t want to say saved my life, but really gave me the insight I needed to.

To kind of take charge and not to be, not be a victim and be a participant in my, my life. So I, you know, [00:05:00] I’m so supportive of this, I think it’s, I think it’s great. I want to say everybody, but if it might not be right for everybody, but for as many people as possible. And I do want to say as a special needs mom we’re, we’re kind of trapped in a lot of situations that can’t, that don’t necessarily resolve.

And I think that having a tool like this can give you an ability to get above. The, the trauma that you’re actually you’re experiencing trauma. Either whether you’re witnessing it or you’re impacted by something that’s happening with your kids or the follow-up from relationship problems. And you know, this tool has been tremendous as well as I’d say cannabis as well, but the plant medicines, the plants, thank God for the plants.

Yeah. So how’s the, you know, you guys have done amazing since I last was even involved. So I don’t know if you want to talk further about that or move into a more personal discussion and talk about like what your life’s been like you gave a little bit, or [00:06:00] any particular lived experience that has moved you into, you know, further understanding why you’re here and what you’re doing.

Kind of thing.

James D: So I’m going to try to actually combine those questions, a segue into the ladder. So where we kind of left off in early 2020 is we had finally heard back from Somerville city councilors mantra. The old mantra goes, you know first, they ignore you. Then they laugh at you, then they debate you, and then you went and that’s the exact formula we have seen across the state with plant medicine is you’re not taken seriously at first, but then when they’re receiving an email a day, From people who are very credentialed and very serious about how this has changed their life, they start to pay attention because the city counselors see a lot of human suffering in their own communities and their own families.

See link above for continuation of transcript!

Points of Light~Cannabis & Spirituality with Sherri Tutkus, RN, BSN

I recently heard some talk in spiritual communities about cannabis, how it possibly harshes our evolution. I’ll admit, I was a little bit triggered when I first heard this. I felt for a moment that what I’d come to understand as my truth, (using cannabis as medicine and as a portal to divine connection and expansion), was under the microscope. I think there’s a lot of misunderstanding of cannabis, cannabis as medicine, cannabis as an entheogen. What I was hearing from some within the spiritual community, didn’t line up with what I had learned and experienced and it was confusing. Cannabis, in many ways, opened a portal so I could see how to save my own life.

So, I did what has become a foundational transformational process for me and I took it to the podcast to ask the burning question I had on my mind about cannabis and spirituality. I thought, “why not interview somebody that I know that has some lived experience in that area?” I reached out to my friend Sherri Tutkus, RN, BSN, Green Nurse, former podcast guest, to see if she’d have this discussion with me. And of course, she said yes. (I will continue interviewing individuals who are interested in sharing their “story” of how their lived experiences, of all shades, let them to stepping more fully into their soul’s purpose.)

From a very young age, Sherri was connected and had some experiences with the divine. What followed from my initial query is a beautiful discussion with her just blowing my mind with the things she’s experienced and where she’s gone and come back from to be a shining light and a heck of a guide for others. Through her combo of traditional medical education, deep lived experience as a patient, nurse, mother, medical cannabis patient, psychedelic explorer and guide, podcaster, businesswoman, and friend to many, her depth of insight is epic. I learned a lot and realized I had the answer within, which it always is, needing a little context and connection to spring loose. Let’s hope you can find some valuable insight as well. Let it rip!

Sherri Tutkus BSN- RN is a leading force in the burgeoning cannabis industry as a nurse, patient, advocate, and activist. All that she shares and teaches facilitates our own innate ability to step more fully into our authentic, divine selves. Sherri is the Founder of The Green Nurse and Chief Nursing Officer at Holistic Caring- a global community of health professionals who provide vetted products and services to support the utilization of plant medicine and other progressive therapies to nourish the endocannabinoid system (ECS). Sherri educates and implements holistic integrative healing modalities within her nursing practice at https://thegreennurse.com/team/sherri-tutkus/

“And through all of that my discovery was this. We have beliefs, and beliefs are fed to us from the outside. And so, we have a choice to either believe it or not believe it. Right. But does a belief make it true? That’s the question that people need to ask. So, truth…. what is truth? Truth is basically when someone has an experience, that can become their truth. All truth is truth. But all truth is not yours and mine at the same time.”

Timestamps with links:

0:00-4:00~Introduction of topic and Sherri
4-5:50~Where it all started…Church (Irish Catholic), early experiences, the angelic realm
5:50-6:49~Beliefs and truth, What is Truth? “All truth is truth but not all truth is yours and mine at the same time”
6:50-7:19~Perception, consciousness, processing
7:20-8:00~ PTSD, trauma response…what happens inside someone is how they view the outside world. Go inside to heal.
8:00-8:45~my teachers throughout the years, exploring modalities, college
8:46-9:34~Sick as a child-Rhys Syndrome, almost died, sick in 2012, almost died~found cannabis
9:35-10:24~Spiritual journey enriched by cannabis, the 2012-conventional medical system failed
10:25-11:19~Son Nicholas born dead. Had rare genetic disorder, communicated with her from birth, paranormal became normal in her home.
11:20-12:29~Spiritual experiences helped her evolve. Nicholas, saw angel, “Mike’s here, he’s a big angel and he wants to tell you that everything will be ok”~ was led into new healing modalities
12:30-12:55~All personal and professional experiences led her to where she is
12:56-13:24~Spirituality is everything! Everything we say or do affects everything else
13:25-15:14~from suffering to hope, decrease stigma, started her podcast, gained real-world experiences~H.I.G.H. reframe
15:15-15:59~Spiritual principles
16:00-18:31~Jill on spiritual community concerns with cannabis, what does consciousness really mean? Question that.
18:32-19:19~on cannabis, anatomy and physiology impacted, neuroprotectant, open neural pathways and eliminate “the box”
19:20-19:59~all here to walk each other home!
20:00-21:00~Cannabis is Ppleotropic-multisystem…all physiological systems at the same time from within. Endocannabinoid system
21:01-22:40~Mother anti-cannabis-Sherri interviewed a nun, Sister Suzanne who was on a ton of fentanyl and got off using cannabinoid medicine (22:25-what would Jesus say? Jesus would say God is in that plant)
22:41-24:37~Nursing, spirituality, cannabis nursing~caring for the entire human experience, connecting with patients, no judgment, hold sacred space
24:38-26:42~ Jean Watson’s theory on human caring is pretty much pairs up really nicely with how we take care of patients https://nurseslabs.com/jean-watsons-philosophy-theory-transpersonal-caring/ , Carey Clark,PhD https://www.amazon.com/Cannabis-Carey-Clark-PhD-AHN-BC/dp/1975144260 A nurse IS her office. Holding space and meeting the patient where they are at
26:43-27:43~ Sherri’s practices, other plant medicine, plant entheogens, psychedelic medicine, Psychedelic nurse with Keta, MD~https://ketamd.com/certified to do home therapy, Shamanic journeys support exploration
27:44~Danielle Simone Brand’s book “Weed Mom” https://www.daniellesimonebrand.com/
28:43~Healy, frequency healing https://healanalyzer.com/
28:51-29:59~Psychedelics, understanding complex PTSD…getting triggered (everything that hurt you comes back), break the unconscious cycle, deepest work with Shamans
30:00-30:35~Psychedelic journeys, how can I heal myself so I can show another?
30:36-31:29~Holistic Caring, Psychedelic Nursing https://holisticcaring.com/
31:30-32:34~Psilocybin and Vets, Psychedelic Nursing, grow your own mushrooms
32:35-33:18~Psychedelics, legality~Ketamine is legal
33:19-34:16-Processing emotion, feelings are meant to be felt
34:17-35:48~Green Nurse Retreats for Energized Living with Denise Costello Cannabis retreats, immersive weekends, also will include psychedelic retreats-microdosing and hero’s journey. in the near future https://www.youtube.com/watch?v=bTu44Wq2NSo
35:49-38:00~Using Cannabis for “spirituality”…pay attention, gratitude, intention, what do you have to show me? Peace Begins with Me, pausing and listening. Nurse Carey Lee and Sherri…https://www.youtube.com/watch?v=mZE7uyiaiBU
38:01-39:59~What happens if you get TOO high? Too much THC-CBD! Lemons, shower
40:00-41:24~Sherri shares a funny personal experience when making edibles
41:25-43:06~Holistic Caring and The Green Nurse information, programs for those in the industry, energy healing, nonprofit…sponsorship goes back into nonprofit, vetting products, dispensaries that want a nursing line
43:06-45:14~Community, the importance of… free supportive community off social media at https://holisticcaring.com
45:15-end Thriving vs. Surviving

Thanks, Sherri!!

Nina Patry~Points of Light, From Primal Scream Therapy to Paradox Process-The Journey Home

“here’s my mother picturing me living in the woods with an outhouse, etc, etc. And she had said to me, how can you be living such a Hard life. So one day I’m out there kicking the ice out of the buckets, thinking hard life. Wait a minute, when my mother was my age, she had five kids, the hardest thing I have to do is kick the frozen ice out of their buckets on these, you know, under zero-degree morning. That’s the hardest thing that I do. What is she talking about? What is she talking about? Again, it’s this whole relative reality, you know, the people look, five, just like me looking from the outside saying, I could never do that.”

Links:

Paradox Process: https://www.paradoxprocess.org/

Ziva Meditation: https://zivameditation.com/

Thomas Jones on Luke Storey Podcast: https://youtu.be/cB5OT3vtpP8

A demo of Paradox Process with Thomas Jones and Emily Fletcher: https://youtu.be/vkXdaGmKTtQ

I can only say I’ve had one of the best times of my life getting to know Nina Patry. For all the negativity around Facebook, that’s where I met her. In a forum for Lorie Ladd, during the COVID madness. Our paths were destined to cross. Our connection and experience together, over the last 6 months, was enough to make me want to podcast again. You’ll hear the description of how I thought we met and then Nina’s description of how we met, which was far more accurate. Funny.  What I want to note is how important it has been for Nina to solidify her inner voice and deep knowing, her authentic self, despite the external reality into which she was born is one in which often didn’t make sense in a way that allowed her to feel loved and at home with her own awesomeness and value.

Born the oldest of 7, to a world-renowned, MD working in the field of Pharmacology~ in NYC, busy parents, whose hands were full, she internalized the message to stay out of the way and not draw attention to herself. did not follow any preconceived or single life path, like me, she’s been an avid student of life. Each experience led her further into asking the question, “Is this really all there is?”. From her earliest memories to today, she weaves a beautiful narrative based upon the inner and outer experience of each memory she shares.  She states, “If I’d have had to plan a life for myself to get me to where I am today, I could not have planned it any better!”

 I am honored to get the chance to ask her questions and discuss pretty much freestyle, her navigation across the time-space continuum, the adventures she’s had along the way, what was gleaned, what was stored and how each experience held a gift, like a scavenger hunt, leading her along the path of further stepping into her soul’s purpose. There’s so much within the episode, and I’ve noted the timestamps that I thought jumped out, below. Please also note the very important links Nina asked me to share on Emily Fletcher and Ziva Meditation as well as on Thomas Jones and The Paradox Process.

“here’s my mother picturing me living in the woods with an outhouse, etc, etc. And she had said to me, how can you be living such a Hard life. So one day I’m out there kicking the ice out of the buckets, thinking hard life. Wait a minute, when my mother was my age, she had five kids, the hardest thing I have to do is kick the frozen ice out of their buckets on these, you know, under zero-degree morning. That’s the hardest thing that I do. What is she talking about? What is she talking about? Again, it’s this whole relative reality, you know, the people look, five, just like me looking from the outside saying, I could never do that.”

6:22-Story of her birth

8:19-Moving around quite a bit, lessons of relative reality

10:30-Germany. Going to Germany as an exchange student-meeting Mormons

15:25-Nina’s boyfriend meets up with her dad at John’s Hopkins-dad did not face things emotionally

16:55 -What attracted her to Mormonism-the gestalt…what life was about, father in heaven, etc

18:55-Dad came home with a cat-couldn’t believe he had given her something so wonderful!

21:00-Always had knowings

22:01-Dream about the cat on the payphone

24:04-What am I getting out of this life if I’m the creator?

25:22-Living in East Village (NYC) during a tumultuous time

30:20-Drawn to the book, “The Primal Scream” without seeing the title. She thought it odd her father would have such a book

33:06-Being in a cult, what she got out of it, “life can be different” theme

34:12-Moving to Vermont, 1981

34:44-Living in the woods in Norwich VT area, no indoor plumbing, thought “they were crazy” at first but then she was in it

35:22-these experiences where she’d observe a situation and say to herself, “I could never do that” and then would be in the situation

36:30-Realization again of relative reality. Mother telling her she has a “hard life” living in the woods, when her mother had already had 5 children at her age

38:20-meeting husband Jim Patry, May 1, 1989 at 5pm

39:50-“Oh that Nina, she doesn’t appreciate our family” (yes she does)…

41:47- Tapping, one of the most effective methods she’s found

41:25-Looking for answers-always wanting to be healthy, looking at health, what did that mean… Healing modalities, “never met a healing modality she didn’t like”….

42:22-March 2020-Awareness of COVID from people at work (Vermont Country Store)-was not afraid at all

43:45-Nina dips back into some of her psychological histories, having diagnoses, bi-polar, being put on medications

44:20-Found meditation via Emily Fletcher of Ziva Meditation and decided she’d rather be “meditated, not medicated”

44:51-Coming off psych meds the right way after discovering Peter Breggin, M.D’s work

46:46-Meeting Thomas Jones, co-creator of The Paradox Process

49:02-Nina’s definition of Paradox Process

50:36-The Paradox Process sends you inside for answers

53:45 Lorie Ladd and The Paradox Process-never happier!!

54:38-From Primal Scream Therapy to Paradox Process

55:34-There are a lot of performers that utilize The Paradox Process, they use their bodies as instruments that need tuning

56:00-Is this a cult? Initial questioning of The Paradox Process after her cult experience

58:25-Concluding discussion-Rutland MA/Rutland VT-Rutland Pharmacy

60:00 The Paradox Process, detailed information