Category: Tuberous Sclerosis

TSC Talks Revival!! JUSTIN LESLIE of Project Whistleblower ~ Truth Under Fire

This is a special edition, TSC Talks Revival episode with Justin Leslie! Justin is an ex-Pfizer scientist and whistleblower. Justin was also one of my first guests on my podcast “TSC Talks” in 2018, (https://bit.ly/3Iz0FUU) where he shared his story about his experience with diagnosis and living with TSC.

I met Justin back in 2016ish through my friendship with his mother, Dorina Leslie. I had qualified and was training for the Boston Marathon to raise money for Tuberous Sclerosis Complex research and was posting about it on social media. Dorina, who had a son diagnosed with TSC, read my story, “Mom of 3 with TSC Runs Boston” (or something like that) and reached out in a Facebook Group. She was so encouraging and supportive! We became friends.  As I started to build the podcast TSC Talks, she suggested I interview her son, Justin, who had a mild form of TSC. Justin had been diagnosed with this dis-ease, later in life than most, and yet had had some significant struggles he’d had to overcome. Struggles that might be helpful if shared and heard by others in similar circumstances.

So, we did the (first) interview. It was incredible to have this young man who had really struggled with his own mortality and sense of purpose after receiving a TSC diagnosis, come and share from the heart, with such conviction, his lived experience and vision for going to study pharmacology to eventually contribute to finding a cure for this hateful dis-ease, Tuberous Sclerosis Complex. His podcast was a hit in the small community centered around TSC and was an inspiration to many. Flash forward several years. I stayed in touch with Justin’s mom, and she’d tell me what he was up to from time to time. He had such a passion and intensity about him, I was confident he was going to make some important contributions. I knew he had been working at Pfizer, and hated it, & the next thing I knew, he was working with Project Veritas and Dorina couldn’t talk about it. I was like Wow. Then more recently he showed up in my feed in pictures from a retreat he attended with Alec Zeck. What a whirlwind! I wanted to talk to him again.

We connected in January 2024 in a phone convo and Justin filled me in on what had been going on with him of late. I was blown da feck away!!! Not only had Justin been working at Pfizer but had gone undercover as a double agent working for Project Veritas, then again at OMG Media with James O’Keefe. He shared that he was working on a documentary called “Project Whistleblower” and was chronicling in the most riveting way, his experiences and strong soul’s urging to share the whole truth of what he uncovered during these last few years.

I told him I’d love to interview him and catch up on his story since the time he was on TSC Talks. I felt it would be so relevant for both of us as we’d kind of come full circle in seeing the inversions of the systems we’d both been heavily invested in and gone through intense disillusionment, yet come away with a renewed passion for getting beyond all the disconnections, fragmentations, half truths of the systems and get at root causes …for TSC, for dis-ease…so I’m sharing the transcript here from our first interview and will be sharing the transcript from our upcoming interview as well! I think this is incredibly important to Justin’s “story” as it demonstrates the vast transformation in awareness and understanding of the systemic inversion and the trance like spell so many are under regarding the half truths and flat out deception propagated over many years, but specifically since 2020 and the injection of half truths related to just about everything we’ve collectively held sacred.  So here we go…here’s the first interview we did together, both in completely different mindsets and circumstances meeting to discuss the impact of the rare disease, TSC.

In “Project Whistleblower” Justin shares his personal journey, including living with Tuberous Sclerosis Complex (TSC), a condition that not only shaped his childhood but also inspired him to pursue a career in pharmacology, aiming to find a cure for his condition.

During his time as a vaccine scientist at Pfizer, Justin began to collaborate undercover with Project Veritas. This partnership led to the revealing of mind blowing revelations about the COVID-19 ‘scamdemic’ and other alleged misconduct within Pfizer. However, he soon started to observe concerning behaviors within Project Veritas, such as the suppression of timely truths and vaccine concerns. These observations led him to question the integrity of the organization and its founder, James O’Keefe.

In collaboration with Marty Leeds, Justin has produced the compelling documentary “Project Whistleblower.” This film delves into his experiences and his growing awareness of the covert tactics and manipulations at Pfizer, Project Veritas, and OMG Media Group. In an era rife with lies and deception, the documentary underscores the revolutionary act of truth-telling.” (credit to Amanda Vollmer: https://yummy.doctor/video-list/advocates-for-truth-amandha-vollmer-adv-with-justin-leslie/)
Contact info for Justin!
Justin Leslie: https://justintegrity.net/
Justin’s Linktree: https://linktr.ee/justinleslie
Contact: justinleslie3@protonmail.com
Donate to Justin’s work: https://www.givesendgo.com/ProjectWhistleblower

WATCH THE DOCUMENTARY HERE:  https://justintegrity.net/project-whistleblower/
Produced by: https://linktr.ee.com/jillwoodworthhttps://jillwoodworth.com

Short clip produced by @jillwoodworth
https://jillwoodworth.com

TSC Talks! Final podcast~Wrapping it Up & Thanks

Jill wraps up the podcast! I started in 2016 by interviewing my kids and how they were affected by Tuberous Sclerosis Complex. It was absolutely divine inspiration from the start and branched out shortly after to interviewing community members and other professionals who worked with those affected. From there, I explored many different topics, providing information and resources in interview form, all with relevance to the individuals and/or parents/caregivers affected by a chronic illness like TSC.

Pushing the boundaries of what was deemed “safe and effective” by our medical system, I continued to put the info out there based on my own lived experience as a parent/caregiver living and dealing with what I’d come to discover is CPTSD if you want to use a label. It was my vision and still is that all “remedies” for improving the quality of life of all involved in the wheels of chronic illness, particularly one such as TSC which affects all the vital body organs, will be an option for all.

Why should we hold back the river when there are so many speaking about how their lives have been impacted by sharing their truths, sharing what’s worked for them and what potentially might help another ease the very real and almost daily traumas of attempting to live with an open heart and navigate our inverted systems of care?

Many of these podcasts go against the grain of what people are comfortable hearing. There are always positive takeaways but there are some heavy heavy experiences that people are walking through and talking about and must be given voice. I think through honest conversation, and taking full responsibility for one’s reactions to other’s sharing from their most painful, heart-wrenching moments, we can begin to hear each other once again at least long enough to realize, we’re all having vastly different experiences yet we all long to be here now, safe, loved, whole, home.

Thanks for tuning in and being here there and everywhere. It’s been the pleasure of a lifetime to have the opportunity to create and share this work.

Love Jill

Special Needs Parents & Caregivers! Check out this discussion of Stem Cell Activating Patches!

An informational meeting on x39 stem cell activating patches and other patches offered by Lifewave. We were joined by Dr. Staci Holweger! Dr. Staci has had remarkable results using these patches personally and to help her own 19-year-old daughter with special needs and would like to reach out specifically to the special needs community about this technology. (https://www.drstaci.net/). I’ve personally had amazing results as has my special needs son (20 with Tuberous Sclerosis Complex/ADHD/anxiety/aggression) “Since 2004, LifeWave has helped people all over the world realize their greatest potential. Our patented, proprietary wellness products help to deliver more energy and stamina, mental acuity, better sleep, reduced stress, improved skin appearance, faster-wound healing, and an overall feeling of youthful vitality. Our products also help people reduce body fat and decrease pain.” https://startx39.com 

For more information~https://lifewave.com/jwoodworth to schedule a call~ https://calendly.com/tsctalkspodcast or email me~ pjlacy6@gmail.com

Conversations with God~on Tuberous Sclerosis Complex

by Jill Woodworth Did those individuals affected by Tuberous Sclerosis Complex drop in for this very time in our collective human history? When I consider the language of the definition of Tuberous Sclerosis Complex and let myself drift into that dreamy abstract place of right-brained “thinking” and quantum insights, I imagine each soul in the … Continue reading “Conversations with God~on Tuberous Sclerosis Complex”

by Jill Woodworth

Did those individuals affected by Tuberous Sclerosis Complex drop in for this very time in our collective human history? When I consider the language of the definition of Tuberous Sclerosis Complex and let myself drift into that dreamy abstract place of right-brained “thinking” and quantum insights, I imagine each soul in the ether packing their akashic record, knowing they wanted to incarnate on the 3D earth plane for this massive collective awakening and evolution we are now experiencing. At least that’s how I choose to see it. It kinda goes like this….

A conversation in the ether…

Soul to God, or higher guide (your choice here):  How could I put all the life lessons I need, into one tight package that will not only with the unfolding most assist me in my soul’s evolution to a higher plane and contribute to the overall awakening of humanity?  

God or higher guide: Well, let’s see, you could jump down in there with a chronic illness, an addiction, or some horrible, complicated cancer, or any number of excruciating “diagnoses”….Wait. Oh, I know, here’s one…There seems to be a number of souls that incarnated more recently with this condition that (get this) causes benign tumors to grow in all the vital organs and possibly all the organs of the human body! Whoa. And those living with this condition end up experiencing all the systems of care have to offer. The good, the bad, the ugly.  The system where they end up spending the most time in the healthcare system, because, oh boy, did you hear that? “benign” tumors, which is really like just saying, let me throw a freakin wrench in it b/c there is no such thing as “benign” in their current healthcare system.  

What happens in an organ-based medical system in which each bodily organ basically has its own system within the system, and these humans are just now realizing that the systems all need to talk to each other in order to actually fix anything long-term? Utter chaos. In the form of treatments organ by organ, and added diagnoses, medications and tests and regimens, “neuropsychiatric” issues, massive behavioral challenges, and all kinds of ways of “managing” what is truly unmanageable. Because their understanding of who they are as divine beings, mind, body, and spirit, a visible reflection of the living God, is not fully understood. Yet.

So, therefore, if you choose to do so, you’ll be taking on the core consciousnesses of humility, failure, guilt, shame, anger, frustration, gratitude, forgiveness, devotion, acceptance, and any exponential fragment of any and all of these that you can imagine. And more. You’ll be stacked. It’ll be the most exciting incarnation you could ever choose! Of course- one requirement. You’ll need to pack in, this huge heart, bigger than the entire world, that all these souls seem to have. Seems to be some sort of portal to the essence of these souls’ purpose. So, overall you’re looking at a really mixed bag. If you have some karmic debt, giddy-up. Past lives haunting you? Welcome. Wanna up level in one lifetime? Welp, sign right up. You will be able to clear it all with a good incarnation or two experiencing this conundrum of a role. But what an opportunity!! Every bodily system you can imagine with a literal “wrench” in it. It will force the humans to understand the dire need for the integration of their minds, bodies, and spirit all in one fell swoop!!

You know all those systems never were created for real live people. More for ideas of people as they were, at a fixed point, about 40 or 400 years behind the rest of the world. Now it’s costing the humans dearly. None of us really are square enough to fit into their rigid round holes anymore. What’s needed is a bunch of y’all to jump on in and just be there. Just be in it, you’ll have help. What’ll happen is that big old heart that you are bringing down will force their hand. Those humans are now embedded within these systems and have lost sight of the bigger picture. The broader perspective one you see up here in the ether. The fully integrated divine human. The one that so many are becoming more aware of is possible to stand in, while they are still in a human body. You’ll be contributing to the frequency of heaven on earth, by creating awareness of the dire need for monumental changes in the way things are done down there!

In dropped the TSC affected, through our channels, and we were aptly chosen for the congruent nature of each of our core consciousnesses……some Magna Carta of soul contracts. The ripple effects of the TSC drop-in splash also contracts with many more souls who also can join in the akashic clean-up adventure of a lifetime.  Their needs are so complicated, and hard to tease out on any given day that those that are gifted with these souls’ presence in their lives, whether as their child, parent, sibling, will be in for some tough reckonings. And deep truths. They may fall deeply in love with these souls, forever transformed by the light they carry, so much so they will accept the loss of attachments to just about everything that they think ever mattered. And most will find it worth it. All will. In time.

So, if you ever question what you are doing here, please reflect on this. You matter. So much. You are here for a reason. Even if you don’t really believe this, I don’t care anymore I’m going to say it. This is a path like non-other, not better or worse but wholly unique and wholly worthwhile. Use your time here on the earth plane to keep finding the higher love, the one that resides in each of us, the one that connects us to the beautiful river of love that we are here to honor…

I’m not sure where it came from but it definitely flowed through me, this new/old soul, experiential learner, who awakened to the gift of being alive, here now, and honored to be awakening through the process of “caregiving” individuals with TSC. So much love to you, to me, to all of humanity but especially to those affected by this diagnosis. 💖

TSC Talks TSC and Covid

TSC Talks talks TSC and Covid.  Guest host Daniel Price joined Jill Woodworth for a roundtable discussion with guests Rob Grandia, Emilie Peters, Heather Still,  Meghan Bittner, Joshua Stroup and Cathy Evanochko.  Check out the time stamps below to find the information you feel will be most helpful and check out the links at the end of this document.

Link to A.I. Transcription of the entire episode: https://otter.ai/s/QagpwwA0SPSIP-kaJs9Sng

Meghan shares that her doctor believes she had Covid very early on before we knew it was in the US.  (6:53)
Heather discusses what happened when her young son was admitted to the hospital for monitoring of seizures and how Covid complicated that.  (8:46)
Kathy discusses what it was like for her in Canada when Covid first hit.  (10:24)
Rob discusses what it was like to be on Capitol Hill in D.C. advocating for TSC support from politicians who obviously knew the seriousness of the virus (11:17)
Josh and Emily discuss how difficult it is to find a job right now as new college graduates (13:24)
Daniel discusses being furloughed from his job and how covid has impacted him.  (15:20)
Jill notes that her life has not changed that much due to Covid (17:02)
Meghan discusses facing a serious health challenge during the shutdown.  (18:28)
Rob discusses telehealth and its benefits and limitations.  (21:27)
Josh speaks about his fear of going to hospitals for routine care at this time.  (23:34)
Emily does not like telehealth visits and prefers seeing her doctors face to face in person. (24:32)
Heather and her children became sick with Covid.  (25:48)
Kathy speaks about the disruption of care due to Covid (26:33)
Meghan shares about being in Minnesota and having life and medical care disrupted due to the racial justice riots and protests.  (32:13)
Further discussion about telehealth, its benefits and its shortcomings (33:58)
The challenges of remote learning (37:23)
Discussion of stress, anxiety and mental health concerns during Covid. (47:01)
Stress and seizures (51:23)
TSC, stress and covid, we are used to adjusting (53:23)
Rob discusses the additional layer of stress caused by wildfires on the west coast (58:51)
Meghan discusses the riots and protests in Minneapolis (1:00:46)
Emily discusses the difficulty of being a new college graduate seeking a job (1:02:17)
Daniel, also on the west coast, talks about the widfires and the additional level of physical and mental stress they cause (1:05:34)
Kathy finds the blessings during Covid (1:06:25)
Rob misses the normalcy of going on dates with his wife (1:07:58)
Megan and Emilie talk gratitude (1:09:56)
Finishing up with one word that sums it up for everyone (1:14:07)

Rob Grandia Links:
https://www.tsalliance.org/individuals-families/adults/adult-regional-coordinators/ https://www.tsalliance.org/about-us/our-leadership/                   https://www.pe.com/2016/05/19/health-walk-helps-fight-disease-that-attacks-internal-organs/ https://www.facebook.com/rob.grandia.3

Daniel Price Links:
Facebook: https://www.facebook.com/daniel.price.1694
Instagram: https://www.instagram.com/pricendaniel/
LinkedIn: https://www.linkedin.com/in/daniel-n-price-7270156a/              https://www.tsalliance.org/wp-content/uploads/2019/06/06-June-Adults-with-TSC-Newsletter.pdf     https://www.rareiscommunity.com/2019/11/27/navigating-a-forever-home-with-a-rare-disease-daniels-story/

Cathy Evanochko Links:
Facebook: https://www.facebook.com/cathy.evanochko                            https://www.tscanada.ca/about-us/board-of-directors/                                   https://www.raredisorders.ca/about-cord/                                                         https://www.tscanada.ca/about-us/

Emilie Peters Links:
Facebook: https://www.facebook.com/emilie.n.peters                                                Instagram: https://www.instagram.com/emilie_peters_/                                          LinkedIn:  https://www.linkedin.com/in/emilie-peters-95ba421a3/                        https://prezi.com/p/pflgttwujtiq/what-is-tsc/

Heather Still Links:
Instagram: https://www.instagram.com/hstillwaters/                                                  LinkedIn: https://www.linkedin.com/in/heather-still-478a9991/

Joshua Shoup Links:
https://www.timesonline.com/7b8a15ce-62c5-11e7-8fcb-ffa59dd8ad56.html        Facebook: https://www.facebook.com/joshua.shoup.3                                                LinkedIn: https://www.linkedin.com/in/joshua-shoup-88777a1aa/

Meghan Bittner Links:

Thanks for tuning in! We hope to produce another “TSC and COVID Convo” in early January. If you are interested in participating, contact TSC Talks on any of our social media channels or click here.