TSC Talks! Final podcast~Wrapping it Up & Thanks

Jill wraps up the podcast! I started in 2016 by interviewing my kids and how they were affected by Tuberous Sclerosis Complex. It was absolutely divine inspiration from the start and branched out shortly after to interviewing community members and other professionals who worked with those affected. From there, I explored many different topics, providing information and resources in interview form, all with relevance to the individuals and/or parents/caregivers affected by a chronic illness like TSC.

Pushing the boundaries of what was deemed “safe and effective” by our medical system, I continued to put the info out there based on my own lived experience as a parent/caregiver living and dealing with what I’d come to discover is CPTSD if you want to use a label. It was my vision and still is that all “remedies” for improving the quality of life of all involved in the wheels of chronic illness, particularly one such as TSC which affects all the vital body organs, will be an option for all.

Why should we hold back the river when there are so many speaking about how their lives have been impacted by sharing their truths, sharing what’s worked for them and what potentially might help another ease the very real and almost daily traumas of attempting to live with an open heart and navigate our inverted systems of care?

Many of these podcasts go against the grain of what people are comfortable hearing. There are always positive takeaways but there are some heavy heavy experiences that people are walking through and talking about and must be given voice. I think through honest conversation, and taking full responsibility for one’s reactions to other’s sharing from their most painful, heart-wrenching moments, we can begin to hear each other once again at least long enough to realize, we’re all having vastly different experiences yet we all long to be here now, safe, loved, whole, home.

Thanks for tuning in and being here there and everywhere. It’s been the pleasure of a lifetime to have the opportunity to create and share this work.

Love Jill

Conversations with God~on Tuberous Sclerosis Complex

by Jill Woodworth Did those individuals affected by Tuberous Sclerosis Complex drop in for this very time in our collective human history? When I consider the language of the definition of Tuberous Sclerosis Complex and let myself drift into that dreamy abstract place of right-brained “thinking” and quantum insights, I imagine each soul in the … Continue reading “Conversations with God~on Tuberous Sclerosis Complex”

by Jill Woodworth

Did those individuals affected by Tuberous Sclerosis Complex drop in for this very time in our collective human history? When I consider the language of the definition of Tuberous Sclerosis Complex and let myself drift into that dreamy abstract place of right-brained “thinking” and quantum insights, I imagine each soul in the ether packing their akashic record, knowing they wanted to incarnate on the 3D earth plane for this massive collective awakening and evolution we are now experiencing. At least that’s how I choose to see it. It kinda goes like this….

A conversation in the ether…

Soul to God, or higher guide (your choice here):  How could I put all the life lessons I need, into one tight package that will not only with the unfolding most assist me in my soul’s evolution to a higher plane and contribute to the overall awakening of humanity?  

God or higher guide: Well, let’s see, you could jump down in there with a chronic illness, an addiction, or some horrible, complicated cancer, or any number of excruciating “diagnoses”….Wait. Oh, I know, here’s one…There seems to be a number of souls that incarnated more recently with this condition that (get this) causes benign tumors to grow in all the vital organs and possibly all the organs of the human body! Whoa. And those living with this condition end up experiencing all the systems of care have to offer. The good, the bad, the ugly.  The system where they end up spending the most time in the healthcare system, because, oh boy, did you hear that? “benign” tumors, which is really like just saying, let me throw a freakin wrench in it b/c there is no such thing as “benign” in their current healthcare system.  

What happens in an organ-based medical system in which each bodily organ basically has its own system within the system, and these humans are just now realizing that the systems all need to talk to each other in order to actually fix anything long-term? Utter chaos. In the form of treatments organ by organ, and added diagnoses, medications and tests and regimens, “neuropsychiatric” issues, massive behavioral challenges, and all kinds of ways of “managing” what is truly unmanageable. Because their understanding of who they are as divine beings, mind, body, and spirit, a visible reflection of the living God, is not fully understood. Yet.

So, therefore, if you choose to do so, you’ll be taking on the core consciousnesses of humility, failure, guilt, shame, anger, frustration, gratitude, forgiveness, devotion, acceptance, and any exponential fragment of any and all of these that you can imagine. And more. You’ll be stacked. It’ll be the most exciting incarnation you could ever choose! Of course- one requirement. You’ll need to pack in, this huge heart, bigger than the entire world, that all these souls seem to have. Seems to be some sort of portal to the essence of these souls’ purpose. So, overall you’re looking at a really mixed bag. If you have some karmic debt, giddy-up. Past lives haunting you? Welcome. Wanna up level in one lifetime? Welp, sign right up. You will be able to clear it all with a good incarnation or two experiencing this conundrum of a role. But what an opportunity!! Every bodily system you can imagine with a literal “wrench” in it. It will force the humans to understand the dire need for the integration of their minds, bodies, and spirit all in one fell swoop!!

You know all those systems never were created for real live people. More for ideas of people as they were, at a fixed point, about 40 or 400 years behind the rest of the world. Now it’s costing the humans dearly. None of us really are square enough to fit into their rigid round holes anymore. What’s needed is a bunch of y’all to jump on in and just be there. Just be in it, you’ll have help. What’ll happen is that big old heart that you are bringing down will force their hand. Those humans are now embedded within these systems and have lost sight of the bigger picture. The broader perspective one you see up here in the ether. The fully integrated divine human. The one that so many are becoming more aware of is possible to stand in, while they are still in a human body. You’ll be contributing to the frequency of heaven on earth, by creating awareness of the dire need for monumental changes in the way things are done down there!

In dropped the TSC affected, through our channels, and we were aptly chosen for the congruent nature of each of our core consciousnesses……some Magna Carta of soul contracts. The ripple effects of the TSC drop-in splash also contracts with many more souls who also can join in the akashic clean-up adventure of a lifetime.  Their needs are so complicated, and hard to tease out on any given day that those that are gifted with these souls’ presence in their lives, whether as their child, parent, sibling, will be in for some tough reckonings. And deep truths. They may fall deeply in love with these souls, forever transformed by the light they carry, so much so they will accept the loss of attachments to just about everything that they think ever mattered. And most will find it worth it. All will. In time.

So, if you ever question what you are doing here, please reflect on this. You matter. So much. You are here for a reason. Even if you don’t really believe this, I don’t care anymore I’m going to say it. This is a path like non-other, not better or worse but wholly unique and wholly worthwhile. Use your time here on the earth plane to keep finding the higher love, the one that resides in each of us, the one that connects us to the beautiful river of love that we are here to honor…

I’m not sure where it came from but it definitely flowed through me, this new/old soul, experiential learner, who awakened to the gift of being alive, here now, and honored to be awakening through the process of “caregiving” individuals with TSC. So much love to you, to me, to all of humanity but especially to those affected by this diagnosis. 💖

TSC Talks guest Carey Lee Leuer

TSC Talks guest Carey Lee Leuer, R.N.,  Cannabis Nurse joined us recently to talk about her journey. Carey Lee is a Registered Nurse, Iowa Green Nurse and Cannabis Nurse Consultant- Integrative Health, Geriatric’s, Mental Health. Here’s some further info, snippets from transcript and time stamps.

From https://thegreennurse.com/cannabis_nurses/carey-lee-leuer/
“Nurse Carey Lee wasn’t always a nurse. Her first career spanning over 15 years was in mortgage finance. Although successful, finance did not ignite the fire in her belly like nursing would. 20+ years after high school, marriage, three boys, and a dog named Cooper she took a leap of faith and went back to school to get her nursing degree. Her clinical experience ranges from emergency medicine, skilled nursing in LTAC, geriatric behavioral health & dementia, restorative nursing, and now her primary practice is holistic integrative nursing. “Nursing is my second career but my first love.”

Nurse Carey Lee also brings her perspective as a patient to the table. She has battled her own emotional health and has experienced incorrect diagnoses and pharmaceutical trauma. This led her on a journey to find ways of healing other than Western medicine’s first line of treatment-pharmaceuticals. She quickly discovered that getting back to the basics of self-care would become the foundation of healing & maintaining optimal health of mind, body, & spirit. She is passionate about educating patients of various healing modalities and showing them how to THRIVE by implementing a customized self-care plan she lovingly refers to as her Daily Five to Thrive. This self-care plan incorporates the basics: sleep hygiene, nutrition, functional exercise, sunshine, and mindfulness.

“Cannabis is one tool we can use to heal & maintain the health of our body, mind, and spirit.” Her own endocannabinoid system was depleted from all of the years of chronic stress that comes with complex post traumatic stress disorder (CPTSD) and seasonal affective disorder (SAD). Thanks to medical cannabis and her daily five to thrive, her endocannabinoid system was replenished. She discovered that medical cannabis was the only way she found relief of the nightmares & terrors experienced most of her life. She also found relief from the chronic pain she battles thanks to Cervical Spondylotic Myelopathy. The plant has also allowed Nurse Carey Lee to open up to explore and discover other healing modalities from Eastern medicine, mycology, reiki, energy healing, and holistic psychology.”

From the transcript:
“I’ve been a registered nurse for three years, a little over three years now. My first career was in mortgage finance completely. You think it would be the opposite? And I did that for about 15 years, everything from like processing, underwriting sales, ended with the bank, owned my own mortgage brokerage firm with my sister and my husband. Wow. Yeah, VIP mortgage group. We ran it out of Elgin, Illinois. And I pretty much ran operations. I handled every aspect of operations and you can be really good at something and hate it. Yeah. And that was me. I it was not fulfilling to me it was it did not tickle my fancy in the slightest. I was miserable. And what made you get into it in the first place? I just kind of fell it fell into it. I actually had left and moved down to Florida after high school in the in the early 90s. And when I came back home to the burbs of Chicago, my sister’s still there. She was just got into the mortgage business herself. Hmm. And so I was crashing at her pad. And she was just like, Hey, you want to come in and check it out? And so I did. And, you know, it just it found me It fell in my lap. And I went with it, you know, so I had a great career, I earned a lovely income and met, plus lots of great life experiences. But like I said, it just wasn’t it wasn’t feeding your soul. It wasn’t feeding my soul.”

Going back to school for nursing (9:54)
How she found green nursing (12:06)
Regular cannabis user and feeling the stigma (13:42)
“Coming out” about cannabis use (15:02)
Working in an ER with c-PTSD (20:23)
Struggling with traditional medical treatment and it’s limitations (23:10)
Cannabis and c-PTSD (25:08)
Cannabis, anxiety and nausea (27:22)
Spirituality, religion and the plant (29:15)
Working with Dr. Clifton (32:07)
Difficulty finding a certifying provider (34:27)
What happens when mom finds out (35:11)
Other family members reaction (35:49)
Carey Lee’s Vision (38:25)
Pharmaceutical trauma/polypharmacy (40:21)

Carey Lee’s Links:
Facebook: https://www.facebook.com/cannanursecareylee
Instagram: http://www.instagram.com/cannabisnursecareylee
LinkedIn: linkedin.com/in/carey-lee-leuer-24b8011a3
The Green Nurse: https://thegreennurse.com/cannabis_nurses/carey-lee-leuer/
Email/contact: greennurse17@gmail.com

LINK TO AI TRANSCRIPT: https://otter.ai/u/3O1SSQ7maoWo8oIOdh-H-6KdK4s

TSC Talks Guest Chris Chambers

TSC Talks guest Chris Chambers is a fascinating man.  I recently had the honor of interviewing the Purple Heart Vietnam Vet who speaks out about the need for medical cannabis for veterans. Chris is a Public Figure For Veterans, Founder of Vet Meds Matter, Motivational Speaker, Mentor, Advocate.  I crossed virtual paths with him when I saw him on a video Mike Robinson posted during the 100,000,000 million mg CBD giveaway and was impressed with his story. In our first conversation, (of which it took 3 to get this audio!🙃 ), Chris mentioned being a Quaker. I immediately felt a connection as my own father was immersed in this philosophy/denomination towards the end of his life. The tenets of kindness towards all, and finding value in every human being despite any external circumstances were a huge part of his mantra. The same can be said for Chris, which you will hear echoed throughout this episode. Chris-Chambers-Military

TSC Talks guest Chris Chambers is a generous, humble, living piece of art! He gave us details on his life since his early childhood, through his experiences in the army, and through many rough patches that he’s been through. He truly has shocking experiences, and now he is happy to be breathing and being able to do good in this world. A truly humble human being that can be considered a living miracle.

He has an extensive resume which includes Sr. Chief Operations Director at VAONC, business owner at Aqua Business Development, Sr. Vice Commander at LifeCall MediAlert Inc., former Superior & Federal Court Officer at County Legal Services of Santa Clara County, former President/CEO at Top Priority Solutions, founder of The Water Chamber, and studied Computer Science and Technology.

Here’s a blog about Chris Chambers written by Mike Robinson Founder, Global Cannabinoid Research Center, Cancer Survivor, Cannabis Advocate and TSC Talks LLC Director of Research and Developlent: Purple Heart Recipient Chris Chambers Talks Cannabis and Veterans- Wounded Physically In A Brutal War & Fighting A System That Refuses To Properly Help P.T.S.D., Cannabis Is His Medicine To Set His Mind At Ease:

Topics Discussed

Early family History and Civil Air Patrol at Age 14 [0:33]

Army [2:41]

Unwelcomed Back [4:45]

Unwelcomed Home [5:54]

Remorse Wanted him Dead [6:38}

Abducted [10:43]

His Journey Taught him to be a Humanitarian [16:00]

New Beginning [16:26]

Proposed a Bill to Congress [17:35]

Saving Thousands of Lives each Month with “Life Call- Life Alert- Lifeline” [18:34]

The Water Chamber [20:12]

100% Disability for Extreme PTSD [29:21]

64 Pills a Day vs. Cannabis [29:59]

From Federal Officer to Truck Driver [31:51]

Another Crumbling Accident [34:28]

Cannabis Led him to Mr. Peron [36:01]

Cannabis Regrowing Bone Marrow [36:18]

A Living Piece of Art [37:27]

Cannabis’ Continuing Impact [38:23]

 

You can find all of our podcasts at https://tsctalks.com/podcast/

Visit https://thesourcecannabinoids.com for hemp derived cannabinoid topical products formulated by Mike Robinson, Founder, Global Cannabinoid Research Center.

TSC Talks Guest Marc D. Lewis, PhD

TSC Talks guest Marc D. Lewis, PhD, “If we are to understand anything so complex and troubling as addiction, we need to gaze directly at the point where experience and biology meet. Because that’s the bottleneck, the linchpin, where human affairs are cast and crystallized. That’s where the brain shapes our lives and our lives shape the brain”

I had the honor and pleasure of interviewing Marc. D. Lewis on TSC Talks to discuss his life and work with the focus of the conversation on how he developed his understanding of addiction, and how he debunked the more traditional theory that addiction is indeed a disease. Marc is a neuroscientist, recently retired full professor of developmental psychology, at the University of Toronto from 1989 to 2010, and at Radboud University in the Netherlands from 2010 to 2016. He is the author or co-author of over 50 journal publications in psychology, cognitive science, and neuroscience, editor of an academic book on developmental psychology, and co-author of a book for parents. More recently he has written two books on the science and experience of addiction.

I heard Marc on a podcast several years ago after reading his blog, https://memoirsofanaddictedbrain.com. I was a few years into recovery from substance abuse addiction and struggling with many of the traditional modes of treatment. As a parent of children with some extra challenges case managing their TSC related care post-divorce, I was buoyed when I heard Marc discussing his 2nd book, The Biology of Desire, Why Addiction is Not a Disease (2015), which claims “the scientific facts don’t support the disease model of addiction. Rather, addiction, like romantic love and other emotionally loaded habits, develops through deep learning and limited alternatives. Combining scientific views with intimate biographies of addicts who recovered, the book also shows how addiction can be overcome, through self-directed change in one’s goals and perspectives.”

Having felt more validated in my own personal experience knowing that there were multiple factors personally at play that led to my own demise, I went and started reading more of his blog and research. Viewing myself as victim of a disease while at the same time having to maintain a somewhat subservient stance to wrangle the services necessary to help our family recover from years of ongoing traumas, was almost too much to bear. I simply could not accept the idea that I had a disease and as I chose to navigate away from that model of understanding, including delving into cannabinoid medicine, I was finally able to intimately integrate past, present and future in a way that I could truly climb out of many self-limiting beliefs reinforced by this notion. Clinging to the disease model of addiction was limiting and I have to say, Marc’s work has made a tangible impact on my own and so many others who have had less than typical experiences for which the confines of traditional recovery methods led to deeper despair and frustration. I’m including a bit more information from Marc’s bio along with some quotes that highlight might be helpful and lead you to download and/or at least listen to this fabulous chat.

Beginning during his undergraduate years in Berkeley, California, Marc experimented with a large variety of drugs, eventually becoming addicted to opiates. He moved to Toronto in 1976 and began to study psychology at the University of Toronto, but at the same time encountered serious personal and legal troubles resulting from his addiction. After quitting drugs at age 30, he continued his graduate education in developmental psychology. He received a Ph.D. and license to practice psychology in 1989, and he was appointed to the position of assistant professor the same year.

Around 2006, Marc’s research led him back to addiction, this time as a neuroscientist studying the brain changes that accompany addiction and recovery. His 2011 book, Memoirs of an Addicted Brain, blends his life story with a user-friendly account of how drugs (from LSD and alcohol to speed and heroin) affect the brain and how alterations in brain function help explain addiction.
His more recent book is The Biology of Desire: Why Addiction is Not a Disease (2015), and it has stirred controversy among people with addictions, their families, addiction researchers, and treatment providers.”

“The fact is that we in the West embrace the logic of pigeonholing problems, giving them unique names and finding technical solutions-the more targeted the better-for alleviating them. That is, to a T, the logic of Western medicine.”

We also discussed the impact of social distancing and quarantine measures on those that might be struggling with addiction during this global pandemic. Please note Marc’s links to social media as well as multiple articles, videos that might be helpful and illuminating for anyone currently struggling.

“What often goes together with addiction is a kind of narrowing of the social world, you get your needs for soothing and satisfaction or pleasure from a substance. You do not need to connect as much. So, the social world kind of shrinks around you. And before long, you kind of lose the opportunity, you lose the availability of other people, you lose friends, you lose family, you kind of, you know, you kind of bury yourself in a little hole in the ground, where you have your substance and you have maybe a couple of other people around you that also are involved in substances That’s it. The Coronavirus also is pushing us to burrow into a shrinking environment. We are sitting there at home by ourselves. And people are just losing even more the opportunity to connect outside of themselves, to extend their, their social web and to extend their possible the availability of getting your needs met by other people and other activities. So that in itself, I think is just the built-in hardship of this lock-down phase that we’re in.”

If you or a loved one or anyone in your circles is feeling at risk and struggling with mental health issues, please don’t hesitate to call National Suicide Prevention Lifeline https://suicidepreventionlifeline.org/ 1-800-273-8255.

Marc’s links are as follows:

Website: https://memoirsofanaddictedbrain.com

YouTube: https://www.youtube.com/channel/UCQvHfB1Kg4zStk5YwMYWH9Q Wikipedia: https://en.wikipedia.org/wiki/Marc_David_Lewis

ResearchGate: https://www.researchgate.net/profile/Marc_Lewis3

The Guardian: https://www.theguardian.com/culture/2015/aug/30/marc-lewis-the-neuroscientist-who-believes-addiction-is-not-a-disease
Videos that are awesome! https://youtu.be/aOSD9rTVuWc

Addiction and Trust: https://www.youtube.com/watch?v=e3p_LuTM73k

With Dalai Lama: https://www.youtube.com/watch?v=WZgx-6GOBAs
Order His Books!:
https://www.memoirsofanaddictedbrain.com/buy-biology-of-desire/
https://www.memoirsofanaddictedbrain.com/buy-it/

TSC Talks thanks Marc D. Lewis, PhD for sharing his wisdom with us.  All of our podcasts can be found at https://tsctalks.com/podcast/